When my daughter was diagnosed with cystic fibrosis, our nurse looked at me and said, “Welcome to the family!” Although I wanted to punch her otoscope lights out at the time, I think I'm finally starting to understand what she meant 13 years later.
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Along with experiencing the typical emotions every parent has when their kids start school, I've also had to teach my son, Maddox, to take responsibility for his cystic fibrosis.
My atypical cystic fibrosis led doctors to believe that my health issues had another cause. Members of the CF community welcomed me as one of their own and helped me to find the answer.
Fitting school, work, and CF treatments into my daily routine is tough, and when I push myself too far, my performance and health suffer. I’m determined, however, to keep going and find a balance that is right for me.
A virtual program for current and recent college students who want to continue building new leadership, advocacy, and fundraising skills to make a difference on their campuses and beyond.
I am so glad I didn't let my fears about handling my cystic fibrosis prevent me from attending college. Here is my checklist of questions to ask yourself if you are still deciding whether to pursue higher education.
Abandoning precautions to return to “normal” will put the health of people who may be at high risk for serious illness from COVID-19 in danger.
Religiously following a schedule and maintaining a to-do list may not seem like much fun, but they have brought sanity and wellness to a hectic life filled with graduate classes and cystic fibrosis treatments.
College life can be stressful when you need to fit in time for classes, treatments, and a part-time job. Now in my second year of law school, I have developed a system that can help you stay organized and balanced.
My husband and I spent our first weekend as parents contemplating the news that our new son had cystic fibrosis. Although we handled it in very different ways, we were ultimately able to overcome the initial shock, with an entire team to help us along the way.