The 23rd annual Ultimate Golf Experience (UGE) brought together a star-studded lineup of entertainers and friends, who gathered in Newport Coast, Calif. to raise funds in the fight against cystic fibrosis.
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Recipients include eight innovative programs from around the country that serve the CF community.
Watch the entire leadership conference, including all of the break-out sessions and Medical Hot Topics, from start to finish.
When Rickey Powell’s first child, Miles, was born, he never anticipated that Miles would spend nearly a month in the NICU. Miles was not gaining weight and, after several long weeks, was diagnosed with cystic fibrosis. Two years later, Rickey’s second child, Marley, was born. She, too, was born with CF.
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I began fundraising and raising CF awareness soon after my son, Aidan, was diagnosed as a baby. After years of successful fundraiser walks, Aidan asked me to stop — opening my eyes to the difference between being a mom of someone with CF and being the person who is living with CF.
When the pandemic started, I started to feel lost and disconnected. That changed when I was introduced to a new program from the Cystic Fibrosis Foundation that taught me how to share my CF story with confidence.
This year’s awardees showcase the diversity of journeys in the cystic fibrosis community.
Mascaro Construction employees have a strong track record of giving back to advance the CF Foundation’s mission. A giving culture is what the late founder, Jack Mascaro, first established when he started the highly successful company.