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Our Research Approach | Patient Registry | Research
CF Foundation Launches Lung Transplant Biorepository and Patient Registry

The Cystic Fibrosis Lung Transplant Consortium Biorepository and Patient Registry, in collaboration with Cleveland Clinic, will provide critical clinical data and samples to support future research investigating complications of lung transplant.

News |
| 4 min read
Care Centers | Patient Registry | Researcher Resources
Patient Registry
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.
About the CF Foundation | Care Team | Patient Registry
New York Times Says Cystic Fibrosis Foundation is Model for Other Chronic Diseases
News |
| 2 min read
About the CF Foundation | Lung Transplantation | Patient Registry
Study Examines Impact of Lung Transplants in Children with CF
News |
| 2 min read
About the CF Foundation | Patient Registry
New Statistics Show CF Patients Living Longer
News |
| 2 min read
About the CF Foundation | Care Centers | Patient Registry
CF Foundation Publicly Reports Care Center Data for National Care Center Network
News |
| 5 min read
Patient Registry
CF Foundation Estimates Increase in CF Population

Today, there are close to 40,000 people in the United States with CF due in large part to more people living longer into adulthood, signaling a shift in what it means to live with CF in the modern era.

News |
| 4 min read