Parents of children with cystic fibrosis may be anxious about whether a school or day care can accommodate their child's special needs. Students with CF may worry about being different from their peers. As a teacher, you can provide reassurance to both parents and students by working with them and CF health care professionals to maximize your student's overall learning experience, while helping to maintain his or her health.
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Revised Law Includes Designated Funding for Rare Diseases
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Historic Time in Treatment of Rare Disease as Promising Drugs Reach Phase 3 Trials
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Legislation to Help Speed Research for Cystic Fibrosis and Other Rare Diseases
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Cystic Fibrosis Foundation Drug Development Model Spawns More Than 30 Promising Therapies
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Our federal and state advocacy efforts support our mission of ensuring that everyone with cystic fibrosis has access to high-quality, specialized care. We evaluate policies and legislation through one lens: How would this impact people with CF and their families?
Foundation and Legislative Supporters Pushed for Bill
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Bill Would Remove Financial Penalties for Participating in Research Studies
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Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease
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