Looking back at my freshman year, I realize that putting college before my CF wasn't the first thing I had all wrong.
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Kids from 20 States Make Case for Drug Funding and Access to Care for Fatal Disease
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Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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Legislation Would Increase Patient and Expert Participation in FDA Review of Rare Disease Treatments
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CFF-Championed Bill Eliminates Barriers to Participation in Clinical Trials for People with CF and other Rare Diseases
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The following questions and answers address concerns from the community about COVID-19 and school.
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By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
I was determined to finish school and set a good example for my children. Along the way, I learned how important it is to have a strong support system to help manage the challenges that can come with cystic fibrosis while I pursue my dreams.
Shandra Arceneaux