A new drug intended to make it easier to clear mucus from the lungs of people with cystic fibrosis showed promising results in a Phase 2 clinical trial. The drug, called SPX-101, blocks the overactive sodium channels that line CF lung cells.
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Today Vertex Pharmaceuticals Inc. announced the two next-generation CFTR modulator candidates that will progress into Phase 3 clinical trials.
Yesterday, President Donald J. Trump signed the Right to Try bill into law. The House approved the bill last week and the Senate passed it last summer.
The top priority in clinical research is protecting the safety of people who participate. Learn more about the numerous layers of review that help keep participants safe.
Learn how Rachel Kinney fits studying for a computer science major, an active social calendar and daily cystic fibrosis treatments into her life.
Our next “Living Today” video features Jordan Scott, 22, whose biggest challenge involves gaining weight. But through her love of studying nutrition, she's been able to overcome her fear of the inevitable: a feeding tube.
When my 8-year-old daughter with CF found out that the disease is potentially fatal, I was grateful for her optimistic views on life and death. But deep down, I was saddened with the thought of a cure being so far away that I wouldn't be around to see it. Today, my fears have dwindled.
As a high school nurse responsible for 1,200 students — three of whom have cystic fibrosis — I'm finding this upcoming school year to be particularly challenging. Here is how I implemented a plan of action to keep each student safe while balancing their specific needs.
Life -- especially when you have cystic fibrosis -- is what you make it. Here is how my CF inspired me to attend law school and helped me get to where I am today.