Hear how frequent flier Stacy Motenko keeps herself organized as she turns traveling with CF into a manageable affair.
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I grew up on a farm in the countryside in Sweden. My younger brother also has cystic fibrosis, so money was always a little tight in my family, due to the costs of treatments. My classmates would often brag about places they had been on their vacation, England, Stockholm, Greece, and I was very envious.
The only thing that is certain in my life is the uncertainty of my teenage daughter's next hospital stay. Despite this, she has somehow managed to supervise her own academic life from a hospital room.
Planning a last-minute vacation before the end of the summer? We’ve got you covered! All week long we’ll be sharing tips, advice and personal stories on traveling with CF.
Looking back at my freshman year, I realize that putting college before my CF wasn't the first thing I had all wrong.
I was determined to finish school and set a good example for my children. Along the way, I learned how important it is to have a strong support system to help manage the challenges that can come with cystic fibrosis while I pursue my dreams.
Preparing for the school year with cystic fibrosis involves careful planning and advocacy. Since my daughter, Desi, started school, I’ve learned about how to best prepare Desi, her teachers, and school administration to help ensure her education and health thrive.
Navigating school can be challenging when you have cystic fibrosis. The following tips can help parents and students feel prepared for a productive school year.
My daughter, Desi, recently started school. Here's what we did to prepare her to manage her cystic fibrosis and navigate the COVID-19 pandemic — and what we learned in the process.