Parents of children with cystic fibrosis may be anxious about whether a school or day care can accommodate their child's special needs. Students with CF may worry about being different from their peers. As a teacher, you can provide reassurance to both parents and students by working with them and CF health care professionals to maximize your student's overall learning experience, while helping to maintain his or her health.
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When my mom used to ask me what I wanted to be when I grew up, I told her that I wanted to be a dad. The journey to fatherhood with cystic fibrosis is full of obstacles, but I would give anything to pass on the traits I've gained from living with this disease to a child of my own.
Learn how Rachel Kinney fits studying for a computer science major, an active social calendar and daily cystic fibrosis treatments into her life.
Our next “Living Today” video features Jordan Scott, 22, whose biggest challenge involves gaining weight. But through her love of studying nutrition, she's been able to overcome her fear of the inevitable: a feeding tube.
In this “Living Today” video, we learn how Carrie Giddens, a 30-year-old with CF, and her husband, Craig, decided to have their first child through IVF and surrogacy.
No matter how good your school district is, be prepared for unexpected challenges when getting your 504 plan in place.
Last August, I watched all of my friends head off to school and all of a sudden I was the only one left still living at home. I hadn't even graduated high school, but I was getting to experience the time-honored and popular British tradition of a taking a gap year.
When my husband and I were given the thumbs-up from my cystic fibrosis doctor to start trying for our own family, it felt like a small victory 12 years in the making. After being referred to a maternal-fetal medicine physician for a preconception consultation, we are finally taking our first steps toward parenthood.
Sending our son to school was scary, but we have a plan to keep him healthy.
As an infertile man with cystic fibrosis, I never thought my wife and I would be on the cusp of our first pregnancy. Fortunately, over the last 18 months, we've learned a thing or two about navigating the in-vitro fertilization (IVF) process.