Complications of cystic fibrosis affect everyone with the disease, regardless of their mutation. We are supporting research into CF complications, such as infections, inflammation, excessive mucus, and gastrointestinal issues, to develop better treatments and improve outcomes for people with CF.
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Infections are caused by tiny organisms. All germs have one thing in common: When they find a place that is good for them to live, they set up a home for themselves and multiply.
This is an exciting time in cystic fibrosis clinical research. Not only are there several clinical trials of therapies to treat the underlying cause of CF, but there are also many trials to treat key symptoms of CF and improve quality of life. These include studies of antibiotics and anti-inflammatories to treat lung infections and inflammation, as well as treatments to improve nutrition and digestion.
The Cystic Fibrosis Foundation would like to recognize and thank the following members of the CF community for providing their time, expertise, and insights to inform the content on this site.
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We have about 70 chapters and offices across the country that work diligently to raise funds and support our community in the search for a cure. They host events (including virtually and outdoors) and serve as a hub for the CF community. Get to know them!
The CF Foundation supports a wide range of innovative research programs to discover and develop new and effective CF therapies.
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The 19th annual Volunteer Leadership Conference (VLC), was held in Denver, CO from March 23-25, 2023. It was a special moment to reunite, share stories, and receive updates on the medical progress being made for those living with cystic fibrosis.
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The Patient Registry is an invaluable tool for researchers conducting observational studies about people with CF in the U.S. About 50,000 individuals have been followed in the Registry since its inception in 1986; many of them have been included for over 20 years.
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The Success with Therapies Research Consortium helps the clinical study of interventions so people with cystic fibrosis can improve the consistency of their day-to-day management of their CF to optimize health outcomes and quality of life.
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