We asked -- and hundreds of you answered -- how you pass the time during long treatments. Check out what the CF community told us when we asked what makes you #morethanCF.
In our first 2016 “Living Today” video, Wes Parsel, 27, talks about almost everyone's New Year resolution: exercise. The big difference is that he's been doing this his whole life, in addition to his daily treatment routine.
For those of us without a medication that targets our cystic fibrosis mutation, it's important to remember that our life with CF is a marathon.
In 1986, I decided to walk across America to raise awareness of CF. Positivity, my martial arts training and the people I met kept me going.
Gyms are wonderful places to exercise, but they can also be great places for germs. Germs can spread as far as six feet (two meters) through droplets released in the air by coughs or sneezes, and can remain in the air on tiny droplets -- ready to be breathed in.
All too often, we begin an exercise program but quickly quit. Change doesn't happen all at once, nor does it happen at the same rate for different people. Starting at the right pace is important, and knowing your fitness level, or state of readiness, is key to finding the exercise plan that's right for you.
I kept at riding because every time my lungs would get tight, I thought of people with CF who would give anything to be out of breath just because they were riding up a hill.
Exercise has been an important part of my life all my life. Here are some tips I have developed along the way.
After turning 60, I decided to mark the milestone by creating a “living list,” 60 things I could do to raise awareness and money for cystic fibrosis care.
Growing up, Keenan Flynn rejected what he saw as negative messages surrounding cystic fibrosis. Keenan credits a healthy mental attitude, and a non-acceptance of the negative messages about his health, for his physical development.