Medicare can be a nuanced program to understand. Knowing the basics on what makes you eligible, and when to sign up can help.
Site Search
Understanding your insurance coverage can go a long way in helping you to anticipate your costs for things like doctor appointments, medication refills, and other services. We’ve put together the basics to help break it all down.
Medicaid can be a key resource for people with CF and their families to afford the highly specialized care they need.
I have found that the limits cystic fibrosis imposes on my life are a bit like weather forecasts -- open to unexpected changes. Whether by hard-fought scientific advances, thoughtful (personal) planning, creative thinking or sheer luck, many of the limits of CF now come with beautiful possibilities attached.
Starting at 6 months of age, I began my daily journey battling my chronic illness, cystic fibrosis. And now, at 28, my heart is heavy because one of my nearest and dearest caregivers passed away unexpectedly … my father.
Hollywood often portrays people with serious illnesses as brave, inspirational characters. I don't always feel that way, and sometimes the real "fight" is facing that fact.
There are no easy remedies for the perpetual dance that the parents of a chronically ill child do to deal with the painful and enduring isolation. And personally, I found a sense of hopeless defeat.
Some days, the biggest struggle I have is accepting that I have CF.
Although my lung transplant was the end of one story, it was also the beginning of another, more difficult story.
CF demands a parent's time, but childhood lessons taught me that all of my children need my love and attention.