Medicare and Cystic Fibrosis

From Part A and B to the new Part D, Compass can help you understand your coverage options and ensure you or your child get the care you need.

What Is Medicare?

Medicare is a federal health insurance program that some people with cystic fibrosis may qualify for — especially adults who are receiving Social Security Disability Insurance (SSDI). If you are no longer able to work due to treatment demands or other health-related issues, SSDI might be an option for you.

After two years of receiving SSDI benefits, you will be eligible for Medicare. Most people who receive SSDI qualify for premium-free Medicare Part A, which covers hospital care. 

Medicare may also be available to: 

  • People 65 years and older who qualify for benefits from the Social Security Administration (SSA) or the Railroad Retirement Board (RRB)
  • People younger than 65 years who are receiving SSDI or people receiving certain disability benefits from the RRB
  • People with end-stage renal disease, which is permanent kidney failure that requires dialysis or a transplant

Medicare is divided into four parts: 

  • Part A: Hospital insurance
  • Part B: Medical insurance
  • Part C: Medicare Advantage plans (offered by private companies)
  • Part D: Prescription drug coverage (offered by private companies)
  • Medicap: Supplemental plans (offered by private companies)  

To see the full list of services covered under Medicare and their costs, visit medicare.gov.

Medicare Part A (Hospital Insurance)

Services typically covered under Medicare Part A include: 

  • Inpatient hospital care
  • Skilled nursing facility care (not custodial or long-term care)
  • Hospice care
  • Home health care

Each Part A service comes with its own set of out-of-pocket expenses and may require you to pay various deductibles, coinsurance, and co-payments.   

Medicare Part B (Medical Insurance)

Medicare Part B helps pay for medical services received outside of the hospital, including doctor visits, outpatient services, some preventive care, and other medically necessary services, including some nebulized CF medications. 

Medicare Part B typically covers: 

  • Services from doctors and other health care providers
  • Outpatient care
  • Diagnostic tests (blood work) and imaging (X-rays, CT, PET scans, MRIs)
  • Home health care when homebound
  • Durable medical equipment
  • Some preventive services
  • Ambulance services
  • Emergency department services
  • Many essential diabetic supplies
  • Some prescription drugs (some nebulized CF medications are covered under Part B)

To receive Medicare Part B, you are required to pay a monthly insurance premium. Most people pay the standard premium amount, which is automatically deducted from your Social Security check each month. If you don’t sign up for Part B when first eligible for Medicare, you may be subject to financial penalties.

You can wait to sign up for Medicare Part B without a penalty if you or your spouse are still working and have health insurance through that job (if the employer has 20 or more employees). This gives you a Special Enrollment Period to enroll later without extra costs. However, COBRA or retiree coverage usually does not let you delay Part B without a penalty.

Out-of-pocket costs for Medicare Part B services vary. Generally, you will pay a deductible annually and then 20% of the Medicare-approved amount for covered services. Some preventive screenings and tests are covered at no cost to you.  

Medicare Advantage Plan (Part C)

Medicare Part C, also known as Medicare Advantage, is provided by Medicare-approved private insurance companies. The companies offering Advantage plans vary by geographical area (zip code and county). Medicare Advantage plans:

  • Include all benefits and services covered under Medicare Parts A and B
  • Cap Medicare Part A and B out-of-pocket costs, determined by the Centers for Medicare and Medicaid Services (CMS), in the calendar year
  • Usually include prescription drug coverage under Medicare Part D
  • May include additional benefits and services, such as dental, vision, food, wellness programs, non-emergency transportation, or home modification
  • Cap insulin products at $35 for a month's supply

While Medicare Advantage plans are required to follow Medicare guidelines, the amount paid for deductibles, co-payments, and/or coinsurance varies by plan. These plans usually have network restrictions, limiting which doctors and hospitals you can use. 

If you choose to enroll in Medicare Advantage plans, you’ll usually pay a monthly premium depending on your plan, income, or where you live. 

These rules can change each year, and the Medicare Advantage plan must notify the enrollee about any changes before the start of the next enrollment year. Open enrollment occurs from Jan. 1 through Mar. 31. Those already enrolled in these plans can make changes Jan. 1 through March 31. 

Medicare Part D (Medicare Prescription Drug Plan)

Medicare Part D, also called Medicare Prescription Drug Plan, helps cover the cost of prescription drugs. It is an optional benefit offered by Medicare-approved private insurance companies. People with Medicare Parts A and B can choose to add Part D to their coverage. Medicare Part D plans: 

  • Cap annual out-of-pocket costs to limit cost sharing for the patient
  • Offer a prescription payment plan
  • Cap insulin products at $35 for a month's supply

If you choose to enroll in Part D, you’ll usually pay a monthly premium depending on your plan, income, and where you live. Each Part D plan has its own rules about deductibles. Some don’t have deductibles while others may cover certain drugs before the deductible is met. 

Open enrollment occurs between Oct. 15 and Dec. 8.  

Medicare Extra Help

Medicare Extra Help is a program from the Social Security Administration that helps people with limited income or resources pay for costs related to a Medicare prescription drug plan. To qualify, your income and savings must be below certain limits. 

If you get Extra Help: 

  • Your monthly premiums and deductibles are set at $0
  • You will pay reduced costs for generic and brand name drugs copays, which is changed annually by CMS
  • You won't have to pay a late enrollment fee for Part D
  • You may be allowed to change your Part D plan outside of the usual enrollment period 

You automatically qualify for Medicare Extra Help if you:

  • Have both Medicare and Medicaid (called full dual eligibility)
  • Are in a Medicare Savings Program that helps with premiums and other costs
  • Receive Supplemental Security Income (SSI) benefits, even if you don’t have Medicaid

Medicare Supplemental Plans (Medigap)

Medigap is a type of insurance that helps pay for costs not fully covered by Medicare Parts A and B, like deductibles and coinsurance. Medigap plans are offered by Medicare-approved private insurance companies.

To get a Medigap plan: 

  • You must have Medicare Part A and Part B
  • You cannot have a Medicare Advantage and a Medigap plan at the same time
  • You must pay a separate premium for a Medigap plan, in addition to your monthly Part B and Part D premiums
  • Medigap plans cover only one person. Your spouse must have a separate individual policy, though you may be eligible for household discounts.

Because there is no annual enrollment period for these plans, you can drop Medigap at any time.

Medigap plans follow Medicare rules and only help pay for services covered by Parts A and B. They pay after Medicare pays its share.

Important things to remember: 

  • If you already have a Medicare Advantage Plan (Part C), you will not be able to purchase a Medigap plan unless you switch back to Medicare Parts A and B.
  • Medigap plans do not cover prescription drugs, so you’ll need a separate Part D plan.
  • Medigap plans are available in all states, but costs may be higher or limited for people under 65 in some areas. 
  • Medigap plans are labeled A through N, and each lettered plan offers different levels of coverage. While many private insurance companies may offer coverage for the same lettered plan, they may charge different rates. However, it's important to know that the coverage offered will be the same, regardless of the company selling it. 

  • Policies automatically renew, and you cannot be dropped unless premium payments are missed or your application includes misinformation

  • During the six-month open enrollment period, insurers cannot deny coverage or charge more due to pre-existing conditions, such as cystic fibrosis. However, insurers can impose a waiting period of up to six months for coverage of a pre-existing condition. 

  • If you apply outside your open enrollment window, you may be denied or charged more due to health history

To compare plans and get a quote, visit medicare.gov.

Comparing Medicare Options

To explore specific Medicare Advantage plans or Medicare prescription drug plans available in your area, visit the Medicare Plan Finder. For more information about Medicare, download the Medicare & You official handbook.

Medicare Enrollment

Enrolling in Original Medicare (Parts A and B) and Part D

Enrollment periods for Medicare Parts A,B, and D may depend on how you will receive benefits: through SSDI or by aging in at age 65 or older. You should enroll in Medicare Parts A, B, and D during your initial enrollment period to avoid financial penalties.

There are certain conditions under which eligible people may choose to delay enrollment in Parts B and D — for example, if they are covered by an employer insurance plan based on active employment. However, Medicare must be notified of any choice to delay enrollment to avoid late enrollment penalties. Special enrollment periods allow individuals to sign up for Part B and D outside of initial enrollment due to life changes like loss of active employment insurance.

If you delayed your Part B enrollment during your initial enrollment period, you can enroll in Part B during Medicare general enrollment period from Jan. 1 and Mar. 31 and your Part B will start on the first day of the following month.

Enrolling in Medicare Advantage Plans

Medicare Advantage is an alternative to Medicare Parts A and B. People with CF can choose this option when they first become eligible for Medicare. 

You can only switch plans — either to a different Medicare Advantage plan or back to Original Medicare — during certain times of the year:

  • Annual Open Enrollment (Oct. 15–Dec. 7): Changes made during this time start on Jan. 1.
  • Medicare Advantage Open Enrollment (Jan. 1–Mar. 31): If you're already in a Medicare Advantage plan, you can switch to another plan or go back to Medicare Parts A and B. You can only make one change during this period, and coverage starts the first day of the next month.
  • Initial Enrollment Period: If you just joined Medicare, you have three months to switch to another Medicare Advantage plan or return to Original Medicare.

For more details, download the official Medicare & You handbook at medicare.gov.

Dual Eligibility

People who qualify for both Medicare and Medicaid are known as dual eligible. For Medicare-eligible individuals with limited incomes, dual eligibility allows for more comprehensive coverage and typically applies to those with significant medical and financial needs. You can still pick how you want to get your Medicare coverage: Medicare Parts A and B or Medicare Advantage (Part C).

If you choose to join a Medicare Advantage plan, there are special plans for dual eligibles that make it easier for you to get the services you need, including Medicare prescription coverage (Part D), and may also cost less, like:

What Services Are Covered?

Dual-eligible individuals receive all benefits included in Medicare Part A, Part B, Part D, and Part C. In addition, Medicaid may also cover certain medications and other benefits that Medicare does not cover, such as long-term services and support, hearing, vision, dental, and transportation.

Coordinating Benefits With Medicaid

Medicaid does not pay first for services covered under Medicare. Medicaid covers only after Medicare or Medigap plans have been applied. It's essential to ensure your benefits are coordinated when planning for medical services and treatments to maximize your benefits.

Medicare Savings Programs

Your state may help you pay for your Medicare Parts A and B premiums through a Medicare Savings Program. If you qualify, Medicare Savings Programs might also help cover your Part A and Part B deductibles, coinsurance, and copayments. There are four programs, and your state determines which program you qualify for based on your income and resources. 

  • Qualified Medicare Beneficiary (QMB) Program: Helps pay for Medicare Part A and/or Part B premiums, deductibles, coinsurance, and copayments.
  • Specified Low Income Medicare Beneficiary (SLMB) Program: Helps pay for Medicare Part B premiums.
  • Qualified Individual (QI) Program: Helps pay for Medicare Part B premiums.
  • Qualified Disabled Working Individual (QDWI) Program: Pays for Part A premiums for certain people who have disabilities and are working. 
Get Help

If you need help understanding Medicare:

  • Learn more about Medicare and CF with Navigating CF.
  • Contact CF Foundation Compass at 844-COMPASS (844-726-7277) to talk with a case manager about your Medicare questions and concerns.
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