TDN Sexual Health, Reproduction, and Gender Research Working Group

To address the unique and emerging needs of people with cystic fibrosis, the Cystic Fibrosis Foundation has established a research working group to identify knowledge gaps, determine research priorities, and develop the infrastructure needed to conduct the research related to sexual, reproductive, and gender health.

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Continued advancements in therapy and health management have led to dramatic increases in the life expectancy of people with cystic fibrosis. This exciting progress has resulted in an older CF population with unique and emerging needs, including a variety of general and CF-specific issues in the areas of sexual, reproductive, and gender health.

To address these critical issues, the Cystic Fibrosis Foundation recently formed a dedicated research working group to understand the unique interplay of sexual, reproductive, and gender health and CF. The early goals of the Therapeutics Development Network (TDN) Sexual Health, Reproduction, and Gender Research (SHARING) Working Group are to identify the gaps in knowledge around sexual and reproductive health issues, including those in women, men, and transgender and nonbinary people with CF; determine future research priorities; and begin to develop the infrastructure needed to efficiently move these research priorities forward.

Community and Researcher Involvement

Given that sexual, reproductive, and gender health issues are complex and multi-faceted, it is imperative that people with CF be included as key stakeholders. In addition to people with CF being members of the working group, regular interactions with people in the CF community will occur by using such CF Foundation programs as Community Voice. The working group will use this forum to gather insights, identify priorities, and inform the most relevant sexual, reproductive, and gender health research projects to people with CF.

The working group also recognizes that collaboration with other researchers who possess unique expertise is critical to advance our understanding of sexual, reproductive, and gender health in CF. As research priorities are developed, input from specialty experts (e.g., fertility, obstetrics, gynecology, endocrinology, urology, etc.) will be elicited and incorporated into related research protocols.

Working Group Membership

The members of the working group include:

	Raksha Jain, MD, MSCI Chair Director of the Adult Cystic Fibrosis Program Co-Director of the University of Texas Southwestern (UTSW) TDN Associate Professor of Medicine, Division of Pulmonary and Critical Care UTSW Medical Center, Dallas
	Traci M. Kazmerski, MD, MS Co-Chair Assistant Professor of Pediatrics University of Pittsburgh School of Medicine Division of Adolescent and Young Adult Medicine Pediatric Pulmonologist, UPMC Children's Hospital of Pittsburgh
	Jennifer L. Taylor-Cousar, MD, MSCS, ATSF Co-Director and CF TDN Director, Adult Cystic Fibrosis Program Professor of Medicine and Pediatrics, Divisions of Pulmonary, Critical Care, and Sleep Medicine, and Pediatric Pulmonary Medicine, National Jewish Health, Denver
	Anna M. Georgiopoulos, MD Associate Professor of Psychiatry Consulting Psychiatrist, Adult & Pediatric Cystic Fibrosis Programs Massachusetts General Hospital/Harvard Medical School
	Ashley Keller, MPH, CCC Clinical Research Manager University of Texas Southwestern Medical Center, Dallas
	Natalie E. West, MD, MHS Assistant Professor of Medicine, Division of Pulmonary and Critical Care Medicine Associate Program Director, Pulmonary and Critical Care Fellowship Johns Hopkins University, Baltimore
	Alexandra W. M. Wilson, MS, RDN, CDE Manager, Cystic Fibrosis Clinical Research Registered Dietitian Nutritionist, Certified Diabetes Educator National Jewish Health, Denver
	Madeline Poranski, Community member Adult with CF
	Jacqui Sjoberg, Community member Adult with CF

Men's Health Sub-Group

The members of this sub-group include:

	Traci M. Kazmerski, MD, MS Chair Assistant Professor of Pediatrics University of Pittsburgh School of Medicine Division of Adolescent and Young Adult Medicine Pediatric Pulmonologist, UPMC Children's Hospital of Pittsburgh
	Aaron Trimble, MD Vice Chair Adult CF Program Director Oregon Health & Science University
	Raksha Jain, MD, MSCI Director of the Adult Cystic Fibrosis Program Co-Director of the University of Texas Southwestern (UTSW) TDN Associate Professor of Medicine, Division of Pulmonary and Critical Care UTSW Medical Center, Dallas
	Farah Khan, MD Clinical associate professor of Metabolism, Endocrinology and Nutrition University of Washington School of Medicine’s Diabetes Institute
	Sigrid Ladores, PhD, RN, PNP, CNE, FAAN Associate Professor and Chair of the Department of Family, Community and Health System University of Alabama at Birmingham School of Nursing
	Danielle Velez Leitner, MD Urologist Rutgers University
	Ranjith Ramasamy, MD Director of the Reproductive Urology Fellowship program University of Miami's Miller School of Medicine
	Vin Tangpricha, MD, PhD Professor of Medicine in the Division of Endocrinology, Metabolism and Lipids Emory University School of Medicine, Atlanta
	Brandon Wright, LSW, CBIS, CDP, Community member Adult with CF

For More Information

For more information regarding this initiative and the TDN Sexual Health, Reproduction, and Gender Research Working Group, please contact Dr. Taylor-Cousar at TaylorCousarJ@NJHealth.org.

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