Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
7202 Glen Forest Drive, Suite 102
Terri Q. Quinan
The Virginia Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved. Your participation in any way will help us achieve our mission – finding a cure for all people with CF. Take a moment to check out our upcoming events and learn more.
Brewer's Ball: A Celebration of Richmond's Finest
7:00 PM, June 27, 2019
Join Richmond's Finest business and community leaders, young professional guests, and local breweries and restaurants for an evening of beer, food, music and networking in support of finding a cure for cystic fibrosis (CF).
Virginia CF Cycle for Life
8:00 AM, August 24, 2019
Hardywood Park Craft Brewery -West Creek
Get your wheels in motion and join us on Saturday, August 24 for our second annual Virginia CF Cycle for Life bicycle event as we ride through some of the most picturesque and scenic terrain in the state. CF Cycle for Life is a fully-supported ride with route options of 15, 22 & 65 miles.
21st Annual Links to a Cure
11:30 AM, September 9, 2019
Salisbury Country Club
The 21st Annual Links to a Cure Golf Tournament will take place on Monday, September 9, 2019 at Salisbury Country Club. The money raised during this golf event will go directly to supporting the mission of the Cystic Fibrosis Foundation - to make CF stand for Cure Found!
2019 Starry Night Chefs Event
6:00 PM, September 26, 2019
Main Street Station (The Shed)
Join us for the culinary event of the year - the STARRY NIGHT CHEFS EVENT - at one of Richmond's most historic and dramatic venues, Main Street Station in downtown Richmond.
7th Annual Virginia Xtreme Hike
4:00 PM, September 28, 2019
DoubleTree by Hilton
In 2018, 66 hikers along with 13 hike guides participated in our 6th annual Virginia Xtreme Hike event, hiking 26.2 (or 13.1) miles in just 1 day to raise awareness and vital funds towards the CF Foundation's mission to find a cure for cystic fibrosis. During the 3 months leading up to Xtreme Hike, these hikers trained as a team under the guidance of experienced hike coaches, while raising over $145,000 net!
2019 Hampton Roads' Finest and Brewer's Ball
7:00 PM, October 25, 2019
Hits at the Park Restaurant, Harbor Park Stadium
The Hampton Roads' Brewer's Ball is the culminating event for the 2019 CFF Hampton Roads' Finest campaign in recognition of our Honorees. CFF Finest Honorees are outstanding men and women who are nominated for their exemplary leadership, active involvement in the community, and business excellence to join in the fight to treat and end CF.
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With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
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