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Help make CF stand for Cure Found

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Procedural Anxiety

Procedural anxiety is the fear or worry related to any medical procedure that can interfere with your ability to receive appropriate medical care. You can partner with your cystic fibrosis care team to find ways to manage this common anxiety.

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Did You Know?

The CF Foundation Lab devotes more than half of its efforts to research focused on nonsense and other rare mutations.

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Things You Shouldn’t Say to a Parent of a Child With CF

After my son was diagnosed with cystic fibrosis, I was stunned by some of the insensitive questions and comments I received from friends and family. Over time, I learned that their unsolicited feedback provided teachable moments that I hope to pass along to other families.

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Restore CFTR Function

The symptoms of cystic fibrosis are caused by a defective protein, known as the cystic fibrosis transmembrane conductance regulator (CFTR). Researchers are investigating potential therapies to restore proper function to the CFTR protein or correct its production process so that a normal protein is made.

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Take Our 2019 CF Health Insurance Survey

Access to care, health insurance coverage, and cost can be challenging for people with cystic fibrosis. We want to hear from you. Take our 15-minute survey and tell us about your experience with health insurance.

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Call us at 1 (800) FIGHT CF

or: 1 (800)-344-4823

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