Intro to CF

Intro to CF

Cystic fibrosis is a genetic disorder that affects the lungs, pancreas, and other organs. Keep reading to learn how to treat and live with CF. 

Overview of CF Read a quick guide about cystic fibrosis

Cystic fibrosis is a genetic disorder that affects the lungs, pancreas, and other organs. Read our guide to learn more.

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Testing and Genetics Dig in a little bit further

Looking for more information on testing for CF and the genetics behind it? Keep reading.

Testing for CF

Diagnosing cystic fibrosis is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.

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Role of Genetics

Close to 40,000 people in the U.S. have cystic fibrosis, a rare genetic disease. The majority of people with CF are diagnosed by age 2 thanks to newborn screening tests. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make decisions about your health care.

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New to CF? If you’re new to CF, you’ve come to the right place.

Have you or your child just been diagnosed with CF? We know it can feel hard to know where to start, so we've collected a few key items to help you. We welcome you to this amazing community.

I'm an adult who was just diagnosed My child has just been diagnosed
For Teachers The partnership between schools and families

Learn how schools and families can work together to create a positive, productive learning environments for children with cystic fibrosis.

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For help with Insurance, Financial, Legal, and Other Issues

Contact a dedicated CF Foundation Compass case manager:
Call us at 844-COMPASS

Mon - Thu, 9 am - 7 pm ET
Fri, 9 am - 5 pm ET (June - August: 9 a.m. - 3 p.m. ET)

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