The Cystic Fibrosis Foundation participates in select media and thought leadership opportunities. Connect with us to discuss cystic fibrosis news, speak with a subject matter expert, and more.
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Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. The CF Foundation’s investments in research and care have added decades to the lives of people with CF, however there is no cure. The CF Foundation works alongside researchers, clinicians, and the CF community to progress research into symptomatic treatments for the disease, high-quality care, and ultimately a cure.
The CF Foundation invests more than $200 million annually in CF research and drug development, including support for the world’s largest CF clinical trials network and the Foundation’s dedicated CF therapeutics lab. Nearly every drug available today for CF was made possible because of the Foundation’s work.
The CF Foundation is dedicated to supporting high-quality, specialized CF care, delivered at more than 130 Foundation-accredited care centers across the U.S. The Foundation’s CF Patient Registry collects data from more than 80% of people with CF in the U.S. to inform quality improvement in care and research to support the CF community’s health needs.
The Foundation works tirelessly to protect access to adequate, affordable insurance that preserves access to high-quality cystic fibrosis care; support progress toward new therapies and a cure; and educate elected officials about the needs of people with CF.