Media Center

Media Center

The Cystic Fibrosis Foundation participates in select media and thought leadership opportunities. Connect with us to discuss cystic fibrosis news, speak with a subject matter expert, and more.

Who to Contact
  • Contact mediarelations@cff.org
    • To connect with a CF Foundation spokesperson, subject matter expert, person with CF or their family

    • For PSAs, logos, photos, videos, and any other permission questions
  • For all other requests, contact info@cff.org

Want to be the first to hear about news and events from the CF Foundation? Sign up for our media professional mailing list

About Cystic Fibrosis

Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. The CF Foundation’s investments in research and care have added decades to the lives of people with CF, however there is no cure. The CF Foundation works alongside researchers, clinicians, and the CF community to progress research into symptomatic treatments for the disease, high-quality care, and ultimately a cure.

Learn more
Research

The CF Foundation invests more than $200 million annually in CF research and drug development, including support for the world’s largest CF clinical trials network and the Foundation’s dedicated CF therapeutics lab. Nearly every drug available today for CF was made possible because of the Foundation’s work.

Research and clinical trials Our venture philanthropy model Drug development pipeline
Care

The CF Foundation is dedicated to supporting high-quality, specialized CF care, delivered at more than 130 Foundation-accredited care centers across the U.S. The Foundation’s CF Patient Registry collects data from more than 80% of people with CF in the U.S. to inform quality improvement in care and research to support the CF community’s health needs.

Care centers CF Foundation Patient Registry
Policy and Advocacy

The Foundation works tirelessly to protect access to adequate, affordable insurance that preserves access to high-quality cystic fibrosis care; support progress toward new therapies and a cure; and educate elected officials about the needs of people with CF.

Policy principles that drive our work Statements, letters, and regulatory comments
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