News

News and Press Releases
Public Policy Cystic Fibrosis Foundation Urges Congress to Reject Harmful and Reckless Cuts to Medicaid

Medicaid is a lifeline for nearly 40% of people living with cystic fibrosis. 

May 13, 2025 | 2 min read
Diagnosis International Journal Publishes Recommendations for CF Newborn Screening

The guideline publication represents the next chapter of the Foundation’s Newborn Screening Initiative.

April 3, 2025 | 6 min read
Public Policy CF Foundation Responds to Mass Reductions in Force Across the FDA and NIH

Sudden cuts threaten transformative treatments and a cure for CF

April 2, 2025 | 4 min read
Public Policy Patient Groups Urge Caution Around Disruptions to Critical Safety-Net Programs

Drastic changes to essential services could have a devastating impact on patient health and well-being. 

April 1, 2025 | 3 min read
Our Research Approach CF Foundation Invests Up to $2.3 Million to Develop Test for Lung Infections

The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor Pseudomonas aeruginosa infections in people with cystic fibrosis.

March 25, 2025 | 3 min read
Advocacy | Our Advocacy Work Cystic Fibrosis Foundation Celebrates New National Volunteer Advocacy Co-Chairs

New co-chairs represent the wide range of experiences in the CF community.

March 20, 2025 | 4 min read
Public Policy 22 National Patient Organizations Voice Concerns to Department of Health and Human Services Removing Key Opportunity for Public Voice

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS.  

March 6, 2025 | 2 min read
Advocacy | Our Advocacy Work More than 150 Advocates Call on Congress to Protect the NIH, FDA, and Medicaid

Volunteers shared personal stories about life with CF while urging members of Congress to protect patients and progress.

Feb. 24, 2025 | 3 min read
Public Policy CF Foundation Responds to the National Institutes of Health Announcement to Limit Funding for Indirect Costs

Protecting research is vital to ensuring people with CF can lead long, fulfilling lives.

Feb. 10, 2025 | 3 min read
CFTR Modulators | Research FDA Approves New, Once-a-Day CFTR Modulator for People With CF

A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that have not been approved previously for any other CFTR modulator.

Dec. 20, 2024 | 3 min read