News and Press Releases
About the CF Foundation | Care Centers Journal of Cystic Fibrosis Spotlights the Evolving Cystic Fibrosis Care Model

The cystic fibrosis care model is evolving to support people living longer with CF and their increasingly diverse health needs. Catalyzed by the approval of Trikafta® and the COVID-19 pandemic, this adaptive and personalized care model encompasses novel ways to connect clinicians and patients.

| 4 min read
Patient Registry CF Foundation Estimates Increase in CF Population

Today, there are close to 40,000 people in the United States with CF due in large part to more people living longer into adulthood, signaling a shift in what it means to live with CF in the modern era.

| 4 min read
Get Involved Cystic Fibrosis Foundation Announces 2022 Impact Grant Recipients

This year’s awardees showcase the diversity of journeys in the cystic fibrosis community.

| 5 min read
Research CF Foundation and Bakar Labs Announce Winners of First-Ever Golden Ticket Competition

The Foundation and Bakar Labs will support AVECRIS Pte Ltd and Nosis Biological Sciences as they pursue genetic therapies for cystic fibrosis with their novel technologies.

| 4 min read
Advocacy | Our Advocacy Work Teens Advocate for the PASTEUR Act as Part of the CF Foundation’s 14th Annual Teen Advocacy Day

More than 60 teens from across the country — 25 of whom live with cystic fibrosis — participated online and on Capitol Hill in the Foundation’s Teen Advocacy Day to advocate for the CF community. 

| 4 min read
About the CF Foundation | Our Research Approach Cystic Fibrosis Foundation Invests $6M in Carbon Biosciences to Advance New Gene Therapy Approach for Cystic Fibrosis

Carbon Biosciences is the first company to publicly launch from the Foundation’s collaboration with Longwood Fund and the first to work alongside CF Foundation researchers at the Foundation’s therapeutics lab

| 4 min read
About the CF Foundation | Our Research Approach Cystic Fibrosis Foundation Invests $5 Million in Sionna Therapeutics to Develop New CFTR Modulator Therapy

New modulators in development by the CF-specific company could provide unique treatment options for the underlying cause of cystic fibrosis for many people with the disease

| 3 min read
About the CF Foundation | Researcher Resources Cystic Fibrosis Foundation Launches Inaugural Golden Ticket Competition to Find the Next Genetic Therapies for CF

Early stage researchers, life science entrepreneurs, and companies are encouraged to apply starting May 2

| 6 min read
Lung Transplantation | Research CF Foundation Awards $1.6 Million to Improve Detection of Lung Transplant Complication

The studies aim to improve early detection of chronic lung allograft dysfunction (CLAD), the leading cause of lung transplant failures.

| 5 min read
About the CF Foundation | Advocacy CF Foundation Announces New National Advocacy Chairs

Marissa Benchea and Jeremy and Rachel Olimb to lead the Foundation’s volunteer advocacy base into a new chapter of CF

| 5 min read