News

Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to maintain their health.  

Nearly 2,000 individuals in the cystic fibrosis community provided insights on the burden of the disease, research priorities, and more to help inform the CF Foundation’s next strategic plan.

Ambitious fundraising campaign continues the legacy of philanthropic leader and CF champion Joe O'Donnell

Medicaid is a lifeline for nearly 40% of people living with cystic fibrosis. 

The guideline publication represents the next chapter of the Foundation’s Newborn Screening Initiative.

Sudden cuts threaten transformative treatments and a cure for CF

Drastic changes to essential services could have a devastating impact on patient health and well-being. 

The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor Pseudomonas aeruginosa infections in people with cystic fibrosis.

New co-chairs represent the wide range of experiences in the CF community.

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS.