News

News and Press Releases
CFTR Modulators FDA Approves Orkambi for Children With CF Ages 1 to 2 Years

Orkambi® is now approved for use in children with cystic fibrosis ages 1-2 years who have two F508del mutations. This is the only modulator available to very young children with these mutations.

| 3 min read
About the CF Foundation | Diversity, Equity, and Inclusion CF Foundation Joins More Than 2,000 CEOs in Commitment to Advance Diversity and Inclusion in the Workplace

CEO pledge is part of the Foundation’s ongoing commitment to strengthen the organization and better serve all people with CF

| 3 min read
Public Policy CF Foundation Celebrates Passage of the Inflation Reduction Act

The law signals major improvements in health care affordability for people with CF.

| 3 min read
About the CF Foundation | Care Centers Journal of Cystic Fibrosis Spotlights the Evolving Cystic Fibrosis Care Model

The cystic fibrosis care model is evolving to support people living longer with CF and their increasingly diverse health needs. Catalyzed by the approval of Trikafta® and the COVID-19 pandemic, this adaptive and personalized care model encompasses novel ways to connect clinicians and patients.

| 4 min read
Patient Registry CF Foundation Estimates Increase in CF Population

Today, there are close to 40,000 people in the United States with CF due in large part to more people living longer into adulthood, signaling a shift in what it means to live with CF in the modern era.

| 4 min read
Get Involved Cystic Fibrosis Foundation Announces 2022 Impact Grant Recipients

This year’s awardees showcase the diversity of journeys in the cystic fibrosis community.

| 5 min read
Research CF Foundation and Bakar Labs Announce Winners of First-Ever Golden Ticket Competition

The Foundation and Bakar Labs will support AVECRIS Pte Ltd and Nosis Biological Sciences as they pursue genetic therapies for cystic fibrosis with their novel technologies.

| 4 min read
Advocacy | Our Advocacy Work Teens Advocate for the PASTEUR Act as Part of the CF Foundation’s 14th Annual Teen Advocacy Day

More than 60 teens from across the country — 25 of whom live with cystic fibrosis — participated online and on Capitol Hill in the Foundation’s Teen Advocacy Day to advocate for the CF community. 

| 4 min read
About the CF Foundation | Our Research Approach Cystic Fibrosis Foundation Invests $6M in Carbon Biosciences to Advance New Gene Therapy Approach for Cystic Fibrosis

Carbon Biosciences is the first company to publicly launch from the Foundation’s collaboration with Longwood Fund and the first to work alongside CF Foundation researchers at the Foundation’s therapeutics lab

| 4 min read
About the CF Foundation | Our Research Approach Cystic Fibrosis Foundation Invests $5 Million in Sionna Therapeutics to Develop New CFTR Modulator Therapy

New modulators in development by the CF-specific company could provide unique treatment options for the underlying cause of cystic fibrosis for many people with the disease

| 3 min read