News

News and Press Releases
Diagnosis Cystic Fibrosis Foundation Leads the Way in Improving CF Newborn Screening Across the U.S.

Through grants, advocacy, and the development of a consensus guideline, the Cystic Fibrosis Foundation continues to advance its Newborn Screening Initiative, pushing for better newborn screening practices to curb delayed diagnoses and further progress health equity.

Sept. 18, 2024 | 5 min read
Research CF Foundation and Bakar Labs Announce 2024 Golden Ticket Winner

The Foundation and Bakar Labs will support Positivo Biotechnology as it pursues novel genetic therapy delivery technologies for people with cystic fibrosis.

Aug. 6, 2024 | 4 min read
Get Involved Cystic Fibrosis Foundation Announces 2024 Impact Grant Recipients

Four programs designed by and for the CF community to support meaningful connections. 

Aug. 1, 2024 | 4 min read
Advocacy The CF Foundation’s 16th Annual Teen Advocacy Day Empowers Teens to Make Their Voice Heard

More than 70 teens from across the country — a third of whom live with cystic fibrosis — urged their members of Congress to pass the PASTEUR Act before the end of the year.

July 2, 2024 | 4 min read
Care Team Cystic Fibrosis Community Perspectives Influence Future of CF Care Model

Community feedback highlights the importance of CF care teams, in-person CF care, and telehealth.

May 7, 2024 | 4 min read
CF Foundation Announces New Chairs of Milestones III Campaign

Long-standing volunteers Kate O’Donnell and Amy Barry to co-chair major gift and planned giving campaign, continuing the legacy of beloved philanthropic leader Joe O’Donnell

April 18, 2024 | 4 min read
Clinical Trials | Our Research Approach CF Foundation Provides Up to $8.5M to SpliSense to Support a Clinical Trial for a Potential Treatment for Splicing Mutations

The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T.

April 3, 2024 | 3 min read
Patient Registry CF Foundation Adapts Registry Reporting to New Race-Neutral Standards

Revised approach to lung function reporting is shown to be more scientifically accurate and may reduce health disparities.

April 2, 2024 | 5 min read
Our Advocacy Work Nearly 350 Advocates Urge Congressional Action During 17th Annual March on the Hill

This year’s program marked the largest in-person advocacy event in the Foundation’s history.

March 19, 2024 | 3 min read
Our Research Approach Cystic Fibrosis Foundation Invests an Additional $5 Million in BiomX

Funding will support a Phase 2b trial of phage therapy for chronic Pseudomonas aeruginosa lung infections.

March 18, 2024 | 2 min read