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News and Press Releases
About the CF Foundation Cystic Fibrosis Foundation Announces Kathryn Brown as Next Chief Communications and Marketing Officer

Brown to join Foundation in April 2023, bringing more than 20 years of experience in nonprofit communications and journalism, with a focus on health and science

| 4 min read
About the CF Foundation | Our Research Approach CF Foundation Invests Up to $2 Million in Nanite Inc. to Explore a New Method to Deliver Genetic Therapies to the Lung

Delivery of genetic therapies to affected tissues is a key challenge to developing new treatments for people with cystic fibrosis. In addition to investing in viral delivery and lipid nanoparticles, the Cystic Fibrosis Foundation is looking at the potential of a relatively new approach to delivery using an exceptionally small synthetic molecule called a polymer nanoparticle.

| 2 min read
Advocacy | Our Advocacy Work More Than 175 Advocates Urge Action During 16th Annual March on the Hill

During the annual event, volunteers advocated for the PASTEUR Act and the HELP Copays Act, two bipartisan pieces of legislation that could have substantial, positive impact on the CF community.

| 3 min read
Patient Assistance | Research Journal of CF Highlights Cost Burden Prevalent in the Cystic Fibrosis Community

Two-thirds of people with cystic fibrosis in the U.S. experience debt, food insecurity, or housing issues.

| 4 min read
Advocacy CF Foundation Applauds Reintroduction of the HELP Copays Act

Bipartisan legislation could help patients access necessary prescription drugs by potentially reducing the financial burden that results from complex and hard-to-navigate health insurance plans

| 2 min read
About the CF Foundation | Diversity, Equity, and Inclusion CF Foundation Formalizes Recommendations to Address Health Inequities

The Foundation seeks to advance its mission by making improvements in key areas of health equity and outcomes and diverse workforce development.

| 3 min read
About the CF Foundation | Diversity, Equity, and Inclusion CF Foundation Reflects on Progress Toward Equity, Racial Justice, Diversity, and Inclusion

The Foundation’s commitment to these principles will continue to be a cornerstone of the Foundation’s work to advance our mission in 2023.

| 4 min read
CF Foundation Invests Up to $15M in ReCode Therapeutics for Development of mRNA Therapy

Funding will support preclinical research and early-stage clinical trials

| 3 min read
Our Research Approach CF Foundation Invests Up to $3.5M in Gensaic for Novel Gene Delivery Method

The Cystic Fibrosis Foundation’s investment will go toward conducting preclinical research on a novel gene delivery vehicle. If successful, this gene delivery method could overcome some of the biggest challenges to delivering a gene therapy into the lung cells of people with cystic fibrosis.

| 2 min read
Advocacy | Insurance | Public Policy CF Foundation Urges Vertex Pharmaceuticals to Reverse Consequential Decision on Copay Assistance

206 care center directors sign a letter citing clinical consequences if decision moves forward. 

| 3 min read