News

News and Press Releases
Public Policy CF Foundation Implores the Senate to Vote Against Devastating Cuts to Necessary Health Care

Proposed cuts to Medicaid and the ACA marketplace will rob people with cystic fibrosis of critical health coverage needed to maintain their health.  

June 17, 2025 | 3 min read
About the CF Foundation Survey Results Detail CF Community’s Ongoing Challenges and Commitment to a Cure for All With CF

Nearly 2,000 individuals in the cystic fibrosis community provided insights on the burden of the disease, research priorities, and more to help inform the CF Foundation’s next strategic plan.

June 11, 2025 | 4 min read
Milestones III Surpasses $200M and Sets Bold New Goal

Ambitious fundraising campaign continues the legacy of philanthropic leader and CF champion Joe O'Donnell

May 14, 2025 | 3 min read
Public Policy Cystic Fibrosis Foundation Urges Congress to Reject Harmful and Reckless Cuts to Medicaid

Medicaid is a lifeline for nearly 40% of people living with cystic fibrosis. 

May 13, 2025 | 2 min read
Diagnosis International Journal Publishes Recommendations for CF Newborn Screening

The guideline publication represents the next chapter of the Foundation’s Newborn Screening Initiative.

April 3, 2025 | 6 min read
Public Policy CF Foundation Responds to Mass Reductions in Force Across the FDA and NIH

Sudden cuts threaten transformative treatments and a cure for CF

April 2, 2025 | 4 min read
Public Policy Patient Groups Urge Caution Around Disruptions to Critical Safety-Net Programs

Drastic changes to essential services could have a devastating impact on patient health and well-being. 

April 1, 2025 | 3 min read
Our Research Approach CF Foundation Invests Up to $2.3 Million to Develop Test for Lung Infections

The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor Pseudomonas aeruginosa infections in people with cystic fibrosis.

March 25, 2025 | 3 min read
Advocacy | Our Advocacy Work Cystic Fibrosis Foundation Celebrates New National Volunteer Advocacy Co-Chairs

New co-chairs represent the wide range of experiences in the CF community.

March 20, 2025 | 4 min read
Public Policy 22 National Patient Organizations Voice Concerns to Department of Health and Human Services Removing Key Opportunity for Public Voice

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS.  

March 6, 2025 | 2 min read