No Practice of Medicine
You understand and agree that we are not engaged in the practice of medicine, either through the Site or any associated communications or services, and that the Site is not a substitute for professional medical advice, diagnosis, or treatment. The Site is provided for informational purposes only and is provided "AS IS." You are encouraged to seek professional diagnosis and treatment for medical conditions. You should never disregard medical advice, delay visiting a medical professional, or deviate from a treatment plan prescribed or recommended to you by your medical professional because of something you have read on the Site. YOU AGREE THAT WE HAVE NO RESPONSIBILITY TO PROVIDE MEDICAL ADVICE NOR TO ADVISE THAT YOU TAKE ANY MEDICALLY RELATED ACTION IN RESPONSE TO ANY INFORMATION ON THE SITE.
We do not recommend or endorse any specific studies, clinical trials, treatments/medications, tests, procedures, physicians, opinions, products, or other information that may appear on the Site or on links reached through the Site. We cannot guarantee the accuracy of information about any clinical trial or treatment described on the Site. We are not liable for any consequences resulting from your participating or not participating in a clinical trial.
Some materials on the Site may be translated into other languages. Please note that not all translations are certified and consult your care team, clinician, or other professional before acting upon any information on the Site.
Future Changes to these Terms
These Terms can change at any time, and you should look at the Terms regularly. In general, your use of the Site after the effective date of any updated Terms posted on the Site constitutes your consent to the updated Terms. We expect that most changes will be minor in nature or reflect changes in the services we offer. However, in the unlikely event that we would ever make changes to these Terms that would materially disadvantage you, we would let you know in advance by email or by posting a notice on the site. The notice would designate a reasonable amount of time before the new terms would go into effect for all users, and if you continue to use the Site thereafter, your use would constitute consent to the new Terms.
Definitions
As used herein, “CF Foundation” includes CF Foundation and any of its affiliates, subsidiaries, officers, directors, employees, and agents.
Future Changes to Our Services or the Site
We may change, terminate, or restrict access to any aspect of our services or the Site, at any time, without notice.
Eligible Users of the Site
The Site is intended for use by adults. If you are between the ages of 13 and 18 years old, you may use the Site only if: (i) your use has been approved by your parent or legal guardian, (ii) you use the Site under their supervision, and (iii) they have agreed to the Terms (and any additional registration agreements, if applicable) on your behalf.
If you are the parent of a minor, you may use the Site and agree to the Terms on behalf of the minor. By doing so, you warrant that you have the legal capacity to act on the minor's behalf and you agree that the provisions of the Terms (and any additional registration agreements, if applicable) that are applicable to you are equally applicable to the minor.
The Site is not intended for use, under any circumstances, by minors under the age of 13.
The Site is intended primarily for individuals who reside in the United States or its territories or possessions. If you are not a resident of the U.S., we make no claim that information on the Site is appropriate or permissible in your country. Products and clinical studies discussed on the Site may have different product labeling and disclosure requirements in different countries. Please see the Privacy Policy for information about how this affects your information.
Content Posted by Users
"Content" is any information (including text, images, video, and audio) submitted or posted by users of the Site to the public areas of the Site. By submitting Content, you grant us a worldwide, non-exclusive, royalty-free right to store, host, reproduce, create derivate works of, publish, publicly perform, display, use and distribute such Content. You also grant us the right to sub-license these rights and the right to sue for infringement of these rights. All these intellectual property rights are reserved. This license only applies to Content you publicly post to the Site — it does not apply to any personally identifiable information you supply when you, for example, create an account, make a donation, or sign up for an event, which is governed by our Privacy Policy.
Discussion Policy for Content Posted for and by Users
The purpose of our social pages on which users and visitors can post Content is to build a positive and productive community for people living with cystic fibrosis, their family, friends and supporters. We ask that you be respectful of others and comply with our Event Attendance Policy.
In general, the CF Foundation does not control, pre-approve, or monitor content submitted by our Community members. Nevertheless, we retain the right, but not the obligation, to monitor, refuse to post, or delete any Content available through the Site. We may remove or block Content and/or block users from CF Foundation community pages if we consider Content to be in any way inconsistent with or harmful to the purpose of the Community, in accordance with our Event Attendance Policy. The CF Foundation may also post its own blogs or other content on the Site, such as responses to inquiries or comments or news and updates about cystic fibrosis.
Posts or discussions by Community members in no way reflect the views of the CF Foundation.
By posting any Content, you are agreeing that you will follow these rules, as well as the rest of these Terms, and that we may use your Content to promote the CF Foundation's work and as described further herein. By posting Content, you further agree that:
- The CF Foundation bears no responsibility for its accuracy, appropriateness, or quality;
- You must evaluate and bear all risks associated with any Content you post, including the risks of any intellectual property or other legal claims related to the Content;
- The CF Foundation will be in no way liable for any Content or any consequences of its inclusion or omission and there is no implication that any Content posted by users on the Site is in any way endorsed or approved by the CF Foundation; and
- You have no recourse against the CF Foundation if we, in our sole discretion, post, refuse to post, delete, or refuse to delete, any Content submitted by users.
Registration, Passwords, and Security
If you register and create a CF Foundation account, you must provide us with accurate information, and you will choose a password. You are responsible for maintaining the confidentiality of your password, and you are not permitted to share your password. You agree to notify us immediately of any unauthorized use of your account. The CF Foundation will not be liable for any loss you or others may incur as a result of someone else using your account, either with or without your knowledge.
Privacy and Protection of Personal Information
Please see our Privacy Policy, which describes how we manage and protect personal information, and which is incorporated into these Terms.
Use of Artificial Intelligence
The CF Foundation prohibits the use of any Artificial Intelligence tool to record meetings if it has not been specifically approved by the CF Foundation. Please refrain from inviting AI transcription tools to meetings organized or managed by the CF Foundation. If the meeting is meant to be recorded, the CF Foundation will send a recording and transcript to attendees after the meeting.
The CF Foundation has a Policy in place for staff use of Artificial Intelligence. The Policy is centered on a risk-based approach to Artificial Intelligence, ethical use of Artificial Intelligence, transparency, and human review of all Artificial Intelligence output and work. Please email privacy@cff.org for more information about the CF Foundation’s use of Artificial Intelligence.
Third-party Accounts
We may use third parties to create, authorize, or service some of our user accounts or services. These third-party services may require you to agree to their terms of use, privacy policy, and other agreements between you and them.
Links to Other Websites
Our Site contains links to other websites not operated by the CF Foundation. We have no control over these other websites and any links to them do not constitute our endorsement of them or their content. You understand and agree that these other websites are governed by their own user agreements and privacy policies.
CF Foundation's Copyright and Trademarks
All information and content, including any software available through the Site, is protected by copyright and/or trademark and is the Intellectual Property of the owner. All rights are reserved. Users are prohibited from modifying, copying, distributing, transmitting, displaying, publishing, selling, licensing, creating derivative works, or using any content available on or through the Site for commercial or public purposes.
The trademarks, logos, and service marks ("Marks") displayed on the Site, including but not limited to the CF Foundation logo, 65 Roses® and Great Strides® are registered trademarks of the Cystic Fibrosis Foundation, are the property of the CF Foundation, and are protected by U.S. and international trademark laws. Their uses are restricted to those programs and events sponsored by the CF Foundation, and CF Foundation trademarks may not be used for personal financial gain.
Use of the Marks is prohibited without the express written consent of the CF Foundation except as permitted by applicable laws. Nothing contained on the Site should be construed as granting, by implication, estoppel, or otherwise, any license or right to use the Marks without the express written consent of the CF Foundation.
At times, the CF Foundation may grant limited-use licensing agreements to individuals or groups who wish to help further the mission of the CF Foundation. Solely at the discretion of the CF Foundation, limited permission for use of the CF Foundation's Marks may be granted for particular projects that provide a substantial benefit to us or the cystic fibrosis community in general.
If you would like to use any Marks or other intellectual property, please submit a written request that details how the CF Foundation's Marks would be used, the length of time they would be used, and the benefit of the project to the CF Foundation or the cystic fibrosis community at least 60 days prior to your intended use. Requests may be sent to:
Cystic Fibrosis Foundation
4550 Montgomery Avenue
Suite 1100 N
Bethesda, MD 20814
Attn: Legal Department
Email: trademarks@cff.org
Copyright Complaints about the Site
The CF Foundation respects the copyrights of others and does not knowingly infringe upon these rights. However, if you believe that your work has been copied and is accessible on the Site in a manner that constitutes copyright infringement, please notify us in writing. The requirements for what you must include in your notice are in the Digital Millennium Copyright Act, 17 U.S.C. § 512. We make every effort to respond quickly to notices of claimed copyright infringement.
You may write to us at:
Cystic Fibrosis Foundation
4550 Montgomery Avenue
Suite 1100 N
Bethesda, MD 20814
Attn: Legal Department
Email: info@cff.org
Communications between You and the CF Foundation
For contractual purposes, you (a) consent to receive all communications from the CF Foundation in electronic form via the email address you submit when you register, and (b) agree that all Terms, agreements, notices, disclosures, and other communications that we provide to you electronically satisfy any legal requirement that such communications would satisfy if they were in printed writing.
Prohibited Uses
As a condition of using the Site, you agree that you will not use the Site in any way that is prohibited by law or these Terms. These prohibitions include, but are not limited to, the following:
- You must not use the Site in any way that may damage, overburden, or impair the Site or its availability, including any denial-of-service or similar attacks.
- You may not use the Site in any way that is illegal, fraudulent or harmful or related to any illegal, fraudulent or harmful activity.
- You may not attempt to gain unauthorized access to the Site, other accounts, or computers or networks associated with the Site, its users, or the CF Foundation, including but not limited to using another person's login credentials.
- You must not use the Site to copy, store, host, transmit, send, use, publish or distribute any material that consists of (or is linked to) any malicious computer software.
- You may not copy, modify, distribute, sell or lease any part of the Site or its content or its software, nor may you reverse engineer or attempt to extract the source code of that software.
- You must not conduct any systematic or automated data collection activities (including, without limitation, scraping, data mining, data extraction and data harvesting) on or in relation to the Site.
- You must not use the Site to send spam, surveys, or any unsolicited commercial communications.
- You must not use the Site for any purposes related to marketing or any other commercial or organizational purpose without our prior express written consent.
- You are required to respect the confidentiality and trust of others participating in any Community Discussion portions of the Site or otherwise posting Content on the Site.
No Warranties
THE CF FOUNDATION DOES NOT MAKE ANY EXPRESS OR IMPLIED WARRANTIES, REPRESENTATIONS OR ENDORSEMENTS WHATSOEVER (INCLUDING, BUT NOT LIMITED TO, WARRANTIES OF TITLE OR NON-INFRINGEMENT, OR THE IMPLIED WARRANTIES OF MERCHANTABILITY OR FITNESS FOR A PARTICULAR PURPOSE) WITH REGARD TO THE SITE, ANY OF THE SITE'S CONTENT, OR ANY MERCHANDISE PROVIDED THROUGH THE SITE OR ON THE INTERNET GENERALLY, AND THE CF FOUNDATION SHALL NOT BE LIABLE FOR ANY COST OR DAMAGE ARISING EITHER DIRECTLY OR INDIRECTLY FROM ANY SUCH TRANSACTION. IT IS SOLELY YOUR RESPONSIBILITY TO EVALUATE THE RELIABILITY, ACCURACY, TIMELINESS, COMPLETENESS, OR USEFULNESS OF ALL SERVICES AND CONTENT PROVIDED THROUGH THE SITE OR ON THE INTERNET GENERALLY. THE CF FOUNDATION DOES NOT WARRANT THAT THE SITE WILL BE UNINTERRUPTED OR ERROR-FREE OR THAT DEFECTS IN THE SITE WILL BE CORRECTED. THE SITE AND THE CONTENT MADE AVAILABLE ON THE SITE ARE PROVIDED ON AN "AS IS" AND "AS AVAILABLE" BASIS. TO THE MAXIMUM EXTENT PERMITTED BY LAW, THE CF FOUNDATION DISCLAIMS ALL WARRANTIES.
YOU ASSUME TOTAL RESPONSIBILITY AND RISK FOR YOUR USE OF THE SITE AND THE INTERNET. YOU ACKNOWLEDGE AND AGREE THAT ANY UPLOADS OR TRANSMISSIONS YOU MAKE MAY BE INTERCEPTED AND USED BY AN UNAUTHORIZED THIRD PARTY AND THAT ALL OF THE RISK ASSOCIATED THEREWITH IS SOLELY YOURS.
The CF Foundation shall also have no liability whatsoever for any unavailability of the Site or for any loss of data or transactions caused by planned or unplanned system outages or the resultant delay, misdelivery or nondelivery of information caused by such system outages, or any third party acts or any other outages of web host providers or the Internet infrastructure and network external to the Site.
Limitation of Liability
UNDER NO CIRCUMSTANCES SHALL THE CF FOUNDATION OR ANY OTHER PARTY INVOLVED IN CREATING, PRODUCING, OR DISTRIBUTING THE SITE BE LIABLE FOR ANY DIRECT, INDIRECT, INCIDENTAL, SPECIAL, PUNITIVE, OR CONSEQUENTIAL DAMAGES FOR LOSS OF PROFITS, GOOD WILL, USE, DATA, OR OTHER INTANGIBLE LOSSES (EVEN IF THE CF FOUNDATION HAS BEEN ADVISED OF THE POSSIBLITY OF SUCH DAMAGES) THAT RESULT FROM (i) THE USE OF OR INABILITY TO USE THE SITE; (ii) THE COST OF PROCUREMENT OF SUBSTITUTE MERCHANDISE AND SERVICES RESULTING FROM ANY MERCHANDISE, DATA, CONTENT, OR SERVICES PURCHASED OR OBTAINED OR TRANSACTIONS ENTERED INTO THROUGH OR FROM THE SITE; (iii) UNAUTHORIZED ACCESS TO, ALTERATION OF, OR USE OR DISCLOSURE OF YOUR TRANSMISSIONS OR DATA; (iv) STATEMENTS OR CONDUCT OF ANY THIRD PARTY ON THE SITE; OR (v) ANY OTHER MATTER RELATING TO THE SITE. YOU HEREBY ACKNOWLEDGE THAT THIS PARAGRAPH SHALL APPLY TO ALL CONTENT, MERCHANDISE, AND SERVICES AVAILABLE THROUGH THE SITE. SOME STATES MAY NOT ALLOW THE EXCLUSION OR LIMITATION OF LIABILITY FOR CONSEQUENTIAL OR INCIDENTAL DAMAGES; IN SUCH STATES LIABILITY IS LIMITED TO THE FULLEST EXTENT PERMITTED BY LAW. YOUR SOLE REMEDY FOR ANY DISSATISFACTION WITH THE SITE OR ITS CONTENTS IS TO STOP USING THE SITE OR ANY SUCH CONTENT. THIS LIMITATION OF LIABILITY IS A PART OF THE BARGAIN BETWEEN THE PARTIES.
IF, NOTWITHSTANDING THESE LIMITATIONS, THE CF FOUNDATION IS FOUND LIABLE TO YOU FOR ANY DAMAGE OR LOSS THAT IS IN ANY WAY ASSOCIATED WITH THE SITE OR ITS CONTENT, THE CF FOUNDATION'S LIABILITY WILL IN NO EVENT EXCEED $50 (FIFTY DOLLARS). THIS LIMITATION SHALL APPLY TO THE MAXIMUM EXTENT PERMITTED BY LAW.
Indemnification for Consequences of User Violations
YOU AGREE TO INDEMNIFY, DEFEND, AND HOLD THE CF FOUNDATION HARMLESS FROM AND AGAINST ANY AND ALL CLAIMS, DEMANDS, ACTIONS, COSTS, LIABILITIES, LOSSES, AND DAMAGES OF ANY KIND (INCLUDING ATTORNEY'S FEES) RESULTING FROM YOUR USE, MISUSE, OR ABUSE OF THE SITE, OR YOUR BREACH OF THESE TERMS. You will cooperate as fully as reasonably required in the CF Foundation's defense of any claim. The CF Foundation reserves the right, at its own expense, to assume the exclusive defense and control of any matter otherwise subject to indemnification by you, and you shall not in any event settle any matter without the written consent of the CF Foundation.
Disputes, Arbitration, and Governing Law
If you have a complaint, question, or dispute (collectively, "dispute") regarding the Site, you are encouraged to bring it to our attention. You may email us at info@cff.org, and we will try to address your concerns. If after both parties have engaged in good faith negotiations, we remain unable to resolve a dispute ourselves, any dispute relating in any way to the Site shall be submitted to confidential arbitration in Montgomery County, Maryland, except that to the extent you have in any manner violated or threatened to violate our intellectual property rights, we may seek injunctive or other appropriate relief in any federal or state court. Arbitration under these Terms shall be conducted in accordance with the prevailing rules and procedures of the American Arbitration Association, with each party being responsible for its own costs and fees, and the joint costs of arbitration being shared equally by the parties. The arbitrator's award shall be final and binding and may be entered as a judgment in any court of competent jurisdiction.
To the fullest extent permitted by applicable law, no arbitration or claim under these Terms may be joined to any other arbitration or claim, including any arbitration or other legal proceeding involving any other current or former user of the Site, and NO CLASS ACTION PROCEEDINGS WILL BE PERMITTED.
By agreeing to arbitration in these Terms, you understand and agree that you are relinquishing (i) any right to pursue claims or have disputes resolved in a court of law, (ii) any right to compulsory discovery, and (iii) any right to the appeal of any adverse arbitration decision.
You agree that, regardless of any law or statute, any claim or cause of action you may have against us must be brought within one year after the claim or cause of action arises or is known or should reasonably have been known to you, or the claim or cause of action will be forever barred.
Except for matters of United States federal law governing copyrights, trademarks, and patents, all matters related to the Site will be governed by the laws of Maryland, without regard to conflicts of laws provisions, and, if applicable, you consent to personal jurisdiction in Maryland courts and venue in Montgomery County, Maryland courts.
Violation of these Terms
You agree that the CF Foundation may, at our sole discretion and without prior notice, terminate your access to the Site if you violate these Terms or for any other reason. You also agree that the CF Foundation may disclose any information we have about you, including your identity, if we determine that such disclosure is needed in connection with any investigation or complaint about your use of the Site or to identify, contact, or bring legal action against you or someone who may be injuring or interfering with our rights or property or the rights of users of the Site.
Other Legal Terms
Any failure or delay by either party to enforce any part of these Terms will not constitute a waiver of that party's rights under these Terms. These Terms control the relationship between you and the CF Foundation, except that if we enter into additional or separate agreements, those terms will supplement these Terms and will control to the extent they are contrary to these Terms. These Terms do not create any third party beneficiary rights. If a particular provision of these Terms is determined by a court of competent jurisdiction to be unenforceable, the other provisions will remain in effect. You may not transfer your account or your rights under these Terms to any other person or entity. Headings used throughout these Terms are solely for convenience. We may, in our sole discretion, transfer, delegate, or assign our rights and obligations under these Terms to others without notifying you or obtaining your consent. Except as otherwise provided herein, the current version of these Terms constitutes the entire agreement between you and us in relation to the Site.
Online Bidding/Auctions
The CF Foundation operates an auction platform accessible at auction.cff.org to facilitate bidding and payment for winning bids at certain fundraising auction events. By bidding on an auction item, you authorize the CF Foundation to charge the pre-registered credit card for the total amount of any auction purchases should you win the bid, plus the amount of any additional purchases, contributions, applicable taxes, etc. If you do not want the total amount to be charged to the pre-registered card, you must inform the CF Foundation prior to the close of the event, and provide an alternate payment method at that time.
Cookies
The Site uses cookies to store information on your computer. By using the Site, you consent to the placement of these cookies. Please read our Privacy Policy to learn more.
Feedback
If you have any concerns, inquiries, or complaints about the Site or these Terms, please write to us at info@cff.org. We appreciate your input.
Prior Versions of These Terms
The prior version of these Terms is available here.
Effective Date
The effective date of these Terms is December 2, 2024.