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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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A woman putting on a vest from the waist down.

BLOG

How I Learned to Live With Bronchiectasis and CF

I was diagnosed late with cystic fibrosis. When I found out I had bronchiectasis on top of that, I was crushed. However, nine years later, my health is as good as it can be, and I’ve learned the value of fighting back.

Marieliz-Landa-Headshot
| 4 min read
A woman and man sitting on a couch reading a book together.

BLOG

Works by the CF Community: Summer 2022

We’re highlighting six creators who are helping raise awareness of cystic fibrosis. By sharing parts of their life with CF on paper or on screen, they’re voicing the variety of ways that people experience the disease.

Hannah-Avery-Headshot
| 8 min read
Laura Steuer smiling wearing a grey turtleneck standing in front of a blue and white painted wall.

BLOG

How a Small Regional Hospital Helped Me Realize the Value of CF Care

I didn’t realize how important my cystic fibrosis care team was — or how they had my back — until I stayed in a hospital where the staff had little knowledge of the needs of people with cystic fibrosis.

Laura Steuer
| 5 min read
Monique smiling with her mom hugging her and leaning on her shoulder.

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Relearning Who I Am After Trikafta

After decades of identifying myself as Monique, “the girl with cystic fibrosis,” I didn’t know who I was anymore after Trikafta changed my health for the better.

Monique Wiegand
| 6 min read
Brian smiling sitting on a mountain top.

BLOG

What Traveling Has Taught Me About CF

My experience traveling with cystic fibrosis has taught me that a chronic illness should never slow you down. It may require extra planning and packing, but it’s worth it and definitely doable.

Brian Donahoe
| 6 min read
Natalie smiling with her mask on sitting at a desk.

BLOG

What It Means to Have a Full-Time Job With CF

Throughout my life with cystic fibrosis, I have marked many milestones. My most important one yet is holding a full-time job while managing my health.

Natalie Keyes
| 7 min read