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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Gina smiling in front of birthday balloons that read "30" and "happy birthday."

BLOG

Thirty Going on Transplant
Feb. 6, 2025 | 6 min read

As someone who does not benefit from any CFTR modulators, I only have one option for improving my lung function — transplant. But just because it’s my only choice does not mean it’s an easy one to make. 

Gina-Alejandra-Headshot
Whitney's son doing his vest treatment while sitting next to his little brother

BLOG

Answering Tough Questions About CF
Feb. 4, 2025 | 5 min read

When my son was diagnosed with cystic fibrosis, I was taught everything I needed to know about CF…except how to navigate the anxiety he experiences. As he’s gotten older, I’ve struggled to know how to answer his tough questions about living with this disease.

A selfie of Whitney Phelps
Megan, her husband Ty, and their two sons smiling outside their home

BLOG

How I Found Community as a CF Spouse
Jan. 23, 2025 | 7 min read

When I first started dating my husband, who has CF, it felt like diving straight into the deep end of the CF world. I was completely overwhelmed at first, but everything changed when I discovered a supportive community of other CF spouses.

A professional headshot of Megan Barker
A professional photo of Marissa, her husband, and her three children looking over a fence at a river

BLOG

How I Discovered I Had Cystic Fibrosis
Jan. 21, 2025 | 4 min read

I spent my childhood and young adulthood being told I was “too young and healthy” to be dealing with the health issues I experienced. But as an adult, I was determined to find answers, and eventually, I was diagnosed with cystic fibrosis.

A selfie of Marissa Wood
Reagan smiling and holding her team's regional champion trophy

BLOG

Finding Strength in Running With CF
Jan. 16, 2025 | 5 min read

Growing up with CF, running was never an easy thing for me. Despite that, I dedicated myself to my school’s cross-country team for years and earned a spot on the varsity team. When the chance to qualify for the state finals came, I knew I couldn’t let CF stand in my way.

A headshot of Reagan Brooks
Madison smiling with her dog in front of a Christmas tree

BLOG

Facing Mortality: My Journey Through CF, Addiction, and Recovery
Jan. 14, 2025 | 5 min read

The looming awareness of my own mortality from cystic fibrosis fueled years of substance misuse. But after hitting bottom and seeking help through a health program, I have been sober since August 2024, reclaimed my mental and physical health, and found strength and community in recovery.

A professional headshot of Madison Bayless