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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Molly smiling with her mom and two sisters.

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Why I Decided Not to Have Children

I grew up thinking I would never be able to have children because of my CF. While advancements in treatments have made motherhood a possibility for many, I ultimately made the painful decision to not have children.

Molly Baker headshot.
Molly Baker
| 6 min read
Luisa sitting on the grass with a mask on outside with her dog.

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Giving You Permission to Accept My Chronic Illness

Although I don’t consider having a chronic illness like cystic fibrosis a good thing, I accept it and I think others should, too.

Luisa-Palazola-Headshot
Luisa Palazola
| 3 min read
Whitney with her husband, Alex and son, Joseph.

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Building Mutual Trust With My Child’s Care Team

Although the initial diagnosis for cystic fibrosis seemed to elude our doctors, we knew in our hearts that our son had cystic fibrosis. When we advocated for and got a CF doctor, we began a relationship that became a partnership of mutual trust and respect.

Whitney Klepadlo headshot.
Whitney Klepadlo
| 5 min read
Liz feeding her daughter Patricia

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Helping My Daughter Learn to Like Food

My daughter was born with cystic fibrosis and with an aversion to food. Teaching her to enjoy meals has been crucial to helping her grow and stay healthy.

Liz Frater headshot.
Elizabeth Frater
| 5 min read
Lindsey Cissell hugging her daughter at the beach.

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Educating Others About CF to Protect Our Daughter

We knew nothing about cystic fibrosis when my first daughter was born with the disease. We quickly became experts and took on the responsibility of educating our friends and family about what our daughter needed to stay healthy and thrive.

Lindsey Cissell headshot.
Lindsey Cissell
| 5 min read
Julia Purcell at a Great Strides walk with her mom and dad.

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Living With an Invisible Illness

I wish people knew that even if I don’t look sick, I still struggle with the mental and physical aspects of cystic fibrosis. Even my family and friends don’t truly understand what this disease does to your mental health.

Julia Purcell headshot.
Julia Purcell
| 5 min read