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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Marisa smiling outside with her family.

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The Challenges of Pregnancy With CF

I was determined to make my dream of becoming a mother a reality despite the potential risks that pregnancy can cause for people living with CF. It certainly wasn’t easy, but the challenges of pregnancy and CF were rewarding in the end because I now have two wonderful girls who call me mom.

Marisa Fairchild
| 6 min read
Larissa smiling outside with her two sons.

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Embracing the Realities of Aging With CF

Now that I’m in my 40s and post-lung transplant, I’m beginning to embrace the realities of aging with cystic fibrosis. Despite the gray hairs and deepening wrinkles, I know that I am lucky to be looking forward to mammograms and menopause.

Larissa Marocco headshot
| 6 min read
Amber smiling with her husband.

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Stable With Trikafta

On the brink of being listed for lung transplant, I started Trikafta®, which has helped stabilize my health and helped me avoid it for now, but a transplant could be in my future.

Amber Howell
| 6 min read
Maddy smiling in her college dorm next to her bed.

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How CF Taught Me to Be Flexible

When I was in college, I wanted to do it all and my health wasn’t as much of a priority anymore. I learned to accept that things will not always go according to plan and to integrate routine in my life to ensure my health comes first.

Maddy Hamp
| 5 min read
Dana smiling sitting on her front steps with her husband and three children.

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Giving Myself Grace

Just like there isn’t always a right (or one) answer to parenting, parenting two kids with CF has shown me that I need to just do the best I can for my family as we navigate my family’s constantly changing needs.

Dana Kibbel headshot
| 5 min read
Tegan sitting in the waiting room of a doctor's office with her arms crossed.

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Why I Took My Daughter Off Trikafta

The excitement we experienced anticipating our daughter, Tegan, starting Trikafta® gave way to sadness and confusion as she experienced emotional side effects.

Katrina Davidson
| 5 min read