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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Morgan and her husband smiling holding their twins outside.

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A Letter to Myself

After opening up a time capsule that I put together when I was 7 years old, I decided to write my childhood self a letter, explaining how great her life is when she is 30.

Morgan-Barrett-Headshot
| 6 min read
Betsy Sullivan smiling at graduation.

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People With CF Are Living Longer. What Does That Mean for Our Care?

I asked the Cystic Fibrosis Foundation’s Dr. Whitney Brown about how cystic fibrosis care might change as the CF population grows, lives longer.

Betsy-Sullivan-Headshot-sq
| 6 min read
Lousia wearing her vest and petting her dog.

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How I Felt Seeing My Daughter in Her Vest for the First Time

I was not emotionally prepared the first time I saw my daughter in her vest. But now, I am thankful to have this device as a part of our daily routine to keep her lungs healthy.

Jamie-Rudnycky-Headshot
| 3 min read
Anna wearing a mask holding a celebratory cake for one year of having cancer.

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Colon Cancer One Year Later

I was diagnosed with stage IV colon cancer. After one year, I’m still fighting a tiring battle with it and cystic fibrosis, but I won’t quit.

Anna Payne headshot
| 5 min read
Nick smiling in front of the Chicago skyline.

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Juggling My Life While on Dialysis

After two kidney transplants and one double-lung transplant, I am currently doing dialysis treatments as I wait for my third kidney transplant. Keeping a positive attitude and having friends and colleagues who support me have helped me adjust to life on dialysis.

Nick-Pettis-Headshot
| 6 min read
Drew smiling hugging her husband, Ramon.

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Role Reversal: When Someone With CF Becomes a Caregiver

As someone with cystic fibrosis, I struggled with the fact that I might be a burden to those who helped care for me. Things changed when I married Ramón and learned the true meaning of caregiving.

Drew-Dotson-Headshot
| 5 min read