Blog

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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Rowan sitting with his daughter on his knee next to his bicycle.

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Cycling Across America

It felt like my life started over when I started taking CFTR modulators. Now, I plan to cycle across America to share my story and continue the fight for those who can’t benefit like I have.

A headshot of Rowan Martin
June 12, 2024 | 5 min read
Betty holding roses and standing between two Eastern Oklahoma chapter directors

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Reflecting on 50 Years of Volunteering

Betty Robinson has been volunteering with the CF Foundation for more than 50 years. In celebration of her 100th birthday, we sat down with Betty to ask her about some of her favorite memories.

Betty Robinson smiling while wearing a sash that reads "100 fabulous years."
June 7, 2024 | 5 min read
A childhood photo of Mike, Matt, and their younger with their arms around each other

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How My Brother Inspired Me to Give Back

Mike and Matt Rallis have always been close as brothers, and it was this relationship that ultimately inspired Mike to give back to the CF community.

A headshot of Mike Rallis
A headshot of Matt Rallis
June 3, 2024 | 7 min read
Cindy speaking in front of a presentation displaying five of her books

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Storytelling as a Path to Change

As an author and activist, I am deeply passionate about both storytelling and advocacy. When these two powerful forces are combined, they become a transformative tool for enacting meaningful change.

Cindy Baldwin smiling while holding a pink rose
May 30, 2024 | 5 min read
A selfie of Marieliz and her husband

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Learning How to Live on a Fixed Income

It was hard for me to accept that having CF limited my finances as well as my body. But doing so helped me learn how to live within a fixed income and ask for help when I needed it.

A selfie of Marieliz and her husband
May 29, 2024 | 6 min read
Daniela Cortez taking a selfie in scrubs in the mirror of a bathroom

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My Long Journey to a CF Diagnosis

I struggled with health issues my whole life — including a liver transplant — but nobody could explain what was wrong with me until I was diagnosed with CF as an adult. Now I finally have an answer, but I’m still figuring out how to feel about it.

A selfie of Daniela Cortez
May 21, 2024 | 10 min read