CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Morgan sitting on a bench outside with her two twins.


10 Unexpected Realizations After Trikafta

I have learned a lot about myself in the three years since I started Trikafta®. Even though I am healthier, I feel less connected to the cystic fibrosis community and my care team.

| 5 min read
Crystal standing outside the Capitol wearing a blue coat.


Talking About CF Used To Overwhelm Me. I Took 3 Small Steps To Find My Voice.

Sharing your CF story is one of the most powerful things you can do, but that can be hard for some of us. If you want to use your voice but struggle with how to get started, here are three things that helped me.

Crystal Brown
| 5 min read
Samantha looking out into the distance outside wearing a hearing aid.


How Antibiotics Took My Hearing

The antibiotics used to treat nontuberculous mycobacteria made me choose between the risk of hearing loss versus the reward of better lung health.

Samantha Marino headshot
| 7 min read
Grace running on a track with a baton.


CF Can’t Stop Me From Running

After I was told to stick with sprints because my cystic fibrosis would make it hard to become a distance runner, I was determined to prove that this disease won’t hold me back from my goals.

Grace Lidgett
| 7 min read
Chelsea kissing her husband on the beach after they are married with their wedding party in the background.


3 Things I Learned Planning My Wedding While Having CF

Cystic fibrosis kept me from thinking that I’d ever get married, but my improved health made my dream wedding possible. Three approaches helped me manage my CF while celebrating the happiest day of my life.

Chelsea Stahl Spruance
| 7 min read
Rebecca smiling at the hospital with her care team.


What I Didn’t Expect About Transitioning From Pediatric to Adult CF Care

My transition from pediatric to adult care filled me with anxiety and proved to be much more difficult than how the experience was described to me. But, when care centers work together with their patients and listen to their concerns, we can improve cystic fibrosis care and address concerns much sooner.

Rebecca Donoho
| 5 min read