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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Desiree smiling while holding a puppy.

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How Hospice Helped Me Through My Daughter’s Passing

Hospice care helped my daughter, Desirée, through her final days.

Deborah Contreras
| 5 min read
Richard smiling with a waterfall in the background.

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Not Being Prepared to Outlive Your Loved Ones

Throughout my life with cystic fibrosis, I never thought about the prospect that I would outlive my loved ones. Now that I have attended some of their funerals, the thought of my own mortality has caught up with me. 

Richard Caldwell
| 7 min read
Margarete smiling with her friends in a selfie photo.

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Making Lifelong Friendships With Other Moms of Kids With CF

A chance meeting at a CF conference 12 years ago gave me one of the most valuable gifts: my CF Mama friend group. Since then, we’ve invested time in our friendship and supported each other through the laughs and the tears.

Margarete Cassalina
| 5 min read
Medora Frei doing a pulmonary function test at clinic in Minnesota.

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Learning to Live With CF After a Late Diagnosis

I had never heard of cystic fibrosis until I received my diagnosis — but learning how to navigate my CF prepared me to advocate for my husband’s medical care and helped me grow as an artist.

Medora Frei
| 8 min read
Alyssa Buechner on the set of Channel 15 News

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Reducing Stigma Around CF

As an adult with cystic fibrosis, I know I am blessed to be healthy right now. I find joy in spreading awareness of CF and encouraging others to follow their dreams no matter what.

Alyssa Buechner
| 5 min read
David smiling outside with his wife and two children.

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The Question Nobody Has Asked About My CF

I have answered questions from many about what cystic fibrosis is, but the question that I really wanted to address was: why do I believe I have CF?

David Cobb
| 5 min read