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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Brian outside pointing at the Golden Gate Bridge

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The Good and Bad of Transplant

The road to recovery after a lung transplant can be long and arduous. It took me awhile to appreciate all the benefits, but I am blessed with the ability to breathe and a new-found confidence that has emboldened me to try new things.

Brian Armstrong
| 6 min read
Vanessa smiling with her mom and dad standing outside.

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How Family Relationships Have Grown Along With Day-to-Day Life

My parents made sure that I enjoyed my childhood despite my health struggles with cystic fibrosis. They focused on making sacrifices and hard decisions, such as relocating to be near my clinic, and never letting me brood over my prognosis.

Vanessa White
| 5 min read
Black and white photo of a girl on a swing set in a butterfly costume.

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Living in the Gray Area

Although she has two CF mutations, my daughter does not have cystic fibrosis. She has CFTR-related metabolic syndrome. She’s healthy now, but what about the future?

Álvaro La Parra-Pérez
| 6 min read
Kianna holding her dog in the woods.

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How I Got Through the Forest Fires in Oregon

My service dog, Jasper, and I relocated across the country and began to find our footing in our new home just before devastating forest fires started spreading around the area. Now, I feel more grateful than ever for the irreplaceable things in life, like Jasper. 

Kianna McAdams
| 7 min read
Breanne with her husband and son.

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A Case of Imposter Syndrome in the CF Community

I have a son with cystic fibrosis, yet I feel like an imposter in the CF community because he is healthy while others are not. Is it right to ask for prayers and expect sympathy, when your child is not yet afflicted with the worst this disease has to offer?

Breanne Dalton
| 5 min read
Madison in a hospital gown with her husband.

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Receiving My CF Diagnosis at Age 20

I felt like I was living with a secret disease because I could never find answers to what was causing the lump of mucus in my throat or the frequent cough that would often embarrass me at school or with friends. Then, finally, I uncovered the secret when I was diagnosed with cystic fibrosis at age 20.

Madison Patterson
| 9 min read