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Creating a Smooth Transition to Transplant Clinic

By Paul Merritt November 26, 2019

Since starting the transplant journey, I have learned many things, run into many roadblocks, and been left shocked by other issues.

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  1. Empowering My Daughter to Take Charge of Her CF Care

    By Kat Quinn June 1, 2016

    At a CF care center visit, I realized that I needed to step back so my daughter could step forward.

  2. Healing One Wound, Opening Another

    By Kat Quinn January 12, 2016

    There is no greater instinct than a mother’s need to protect, and I have had to willfully disregard it countless times in my journey with CF.

  3. Teaching Through Example

    By Kat Quinn October 23, 2015

    I have spent many days trying to impart my commitment to my daughter in her fight with CF but, in the end, she feels alone. I take a moment to reprimand myself for forgetting the importance of teaching through example. Then, I focus on change.

  4. My Small War Against the Feeding Tube

    By Kat Quinn September 10, 2015

    Why do we feel like failures if we can’t get our children to gain weight and have to concede the battle against the feeding tube?

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