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What We’ve Learned From Our Grandchild With CF

By Jamie Schlosser & Marian Schlosser September 10, 2021

Our hearts stopped when we first heard that our grandson, Jase, had cystic fibrosis. We didn’t even know what it was. However, we have learned a lot along the way and have gotten used to rolling with the ups and downs of this disease.

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  1. Role Reversal: How I Balanced Caregiving as a CF Patient

    By Katelyn Harlow December 16, 2019

    As an adult with cystic fibrosis, I am used to being the patient and having someone take care of me. However, the roles were reversed when my then-fiancé needed surgery. Striking a balance between taking care of him and myself was difficult but necessary.

  2. Finding the Strength to Ask for Help

    By Katelyn Harlow December 17, 2018

    Although I asked for help to manage the physical aspects of my disease, it took a long time for me to feel comfortable asking for support for the emotional impact of cystic fibrosis.

  3. 5 Requests for My Friends and Family This Flu Season

    By Katelyn Harlow October 30, 2018

    In the past, I was hesitant to voice my needs to my friends and family -- especially when it came to germs during flu and cold season. But as I’ve gotten older, I’ve realized that these five requests can help make this time of year a whole lot easier.

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