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What We’ve Learned From Our Grandchild With CF

By Jamie Schlosser & Marian Schlosser September 10, 2021

Our hearts stopped when we first heard that our grandson, Jase, had cystic fibrosis. We didn’t even know what it was. However, we have learned a lot along the way and have gotten used to rolling with the ups and downs of this disease.

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  1. Despite COVID-19, I Participated in a CF Clinical Trial

    By Jenny Livingston December 15, 2020

    I’m a big proponent of participating in clinical research, but COVID-19 made me think twice about participating in a clinical trial that required six hospital visits. However, a screening visit reassured me that the researchers were taking all the necessary precautions.

  2. Putting Convenience Before the Vulnerable

    By Jenny Livingston August 31, 2020

    Abandoning precautions to return to “normal” will put the health of people who may be at high risk for serious illness from COVID-19 in danger.

  3. Just Because I Can’t Work Doesn’t Mean I Am Lazy

    By Jenny Livingston August 8, 2019

    In an ableist society, sometimes you just have to ignore comments that make you feel worthless for not working. If I had the chance, here is what I would tell people who judge those with an invisible illness.

  4. Facing My Fears About Transitioning to an Adult Care Team

    By Jenny Livingston December 4, 2018

    I dreaded transitioning from my pediatric care center to my adult care center. I was stubborn and knew that I did not want to go. I thought I knew best, that is, until one phone call changed my entire perspective.

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