Featured
My Sobriety Journey
By
Joey Pelletier
June 10, 2021
As a person with cystic fibrosis, I used alcohol and drugs to fit in with my peers and cope with the hardships of having a chronic disease. I still struggle with sobriety, but I have taken control of my health and my life.
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Despite COVID-19, I Participated in a CF Clinical Trial
By
Jenny Livingston
December 15, 2020
I’m a big proponent of participating in clinical research, but COVID-19 made me think twice about participating in a clinical trial that required six hospital visits. However, a screening visit reassured me that the researchers were taking all the necessary precautions.
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Putting Convenience Before the Vulnerable
By
Jenny Livingston
August 31, 2020
Abandoning precautions to return to “normal” will put the health of people who may be at high risk for serious illness from COVID-19 in danger.
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Just Because I Can’t Work Doesn’t Mean I Am Lazy
By
Jenny Livingston
August 8, 2019
In an ableist society, sometimes you just have to ignore comments that make you feel worthless for not working. If I had the chance, here is what I would tell people who judge those with an invisible illness.
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Facing My Fears About Transitioning to an Adult Care Team
By
Jenny Livingston
December 4, 2018
I dreaded transitioning from my pediatric care center to my adult care center. I was stubborn and knew that I did not want to go. I thought I knew best, that is, until one phone call changed my entire perspective.