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Managing CF, Parenting, and Anxiety

By Victoria Greene July 07, 2020

It’s difficult to manage cystic fibrosis self-care when you have a child with a disability. Don’t pressure yourself to be like other moms. Just do the best you can. Your kids will value your efforts.

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  1. Video Explains How Gene Editing Could Be Used for CF

    By Susan Schept December 21, 2016

    The Cystic Fibrosis Foundation is funding research into gene editing techniques to see if they can be used to fix the mutations that cause cystic fibrosis. One of the most popular techniques is CRISPR-Cas9. To see how this might work for CF, watch this video.

  2. Gene Editing: Q&A With Bill Skach

    By Susan Schept June 20, 2016

    Cystic Fibrosis Foundation Therapeutics Inc. made its first major award last month to advance gene editing research in cystic fibrosis. Editas Medicine Inc. will explore the potential of using what some scientists refer to as “a tiny pair of scissors” to snip out the genetic defect that causes CF.

  3. Register Today to Learn More About the Latest in CF Research and Care

    By Susan Schept September 30, 2015

    Hear from John P. Clancy, M.D., the first plenary speaker at this year’s NACFC, about recent advances in personalized medicine, which could allow clinicians to better tailor treatment to the individual with CF.

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