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Creating a Smooth Transition to Transplant Clinic

By Paul Merritt November 26, 2019

Since starting the transplant journey, I have learned many things, run into many roadblocks, and been left shocked by other issues.

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  1. Creating a Smooth Transition to Transplant Clinic

    By Paul Merritt November 26, 2019

    Since starting the transplant journey, I have learned many things, run into many roadblocks, and been left shocked by other issues.

  2. Facing and Embracing CFRD

    By Megan Lepore November 25, 2019

    Although I didn’t have cystic fibrosis-related diabetes, I avoided dealing with my blood sugars. Now that I do, I feel stronger physically and emotionally.

  3. My Self-Advocacy Saved Me From Surgery

    By Eliza Callard November 12, 2019

    I didn’t know whether to cry on my surgeon’s shoulder or punch him. In the end, I did neither. I looked back at him, dug deep, and said over and over again, “No. I won’t sign.”

  4. Learning Empathy and Self-Advocacy by Teaching Communication to Medical Professionals

    By Tannaz Motevalli June 10, 2019

    As an individual with cystic fibrosis, I can give you all kinds of examples of how providers shouldn’t treat their patients. However, it was my experience as a fictional patient that taught me how to be a better CF patient.

  5. The 3 Words I Want Every Single Hospital Employee to Hear

    By Elise Free March 15, 2019

    As the mother of a child with cystic fibrosis, here’s what I wish everyone in our hospital understood about my daughter and her CF care.

  6. 5 Things I Wish My Care Team Knew About Me

    By Cheriz K. March 7, 2019

    Effective communication is the best way to establish a partnership in care. Here are five things I hope to share with my cystic fibrosis care team to help them better understand where I’m coming from and what I need to stay healthy.

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