CF Community Blog

Featured

Tips on Surviving Quarantine From a Person With CF

By Leah Schwanke March 27, 2020

Is being cooped up at home giving you the blues? Welcome to the world of cystic fibrosis patients! We know all too well what it is like to practice social distancing and to shelter in place.

Filter Posts By

Clear Filters

  1. A Doctor’s Perspective on CF Care

    By Patrick Flume, MD & Savannah Fuller March 30, 2020

    Patrick Flume, MD, is a pulmonologist and the director of the adult cystic fibrosis center at the Medical University of South Carolina and part of my care team. For National Doctor's Day, I had the opportunity to sit down with Dr. Flume and ask him some questions about CF, his approach to CF care, and how it's changed during his career.

    Topics:

  2. What I Learned About My Trikafta Weight Gain

    By Meagan Helmick March 6, 2020

    Trikafta has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn’t alone in my concern about my sudden weight gain and that bringing the topic up to my care team didn’t mean that I wasn’t grateful for all Trikafta has done for me.

  3. How Patient Surveys Made Our Care Team More Sensitive to a Single Voice

    By Allison Moreau, BS, RRT February 13, 2020

    The Patient and Family Experience of Care Survey helps cystic fibrosis care teams start formal quality improvement projects, but it also has helped my team become more sensitive to the voices of our patients.

  4. How I Found the Right Mental Health Counselor

    By Nicole Meier January 9, 2020

    A lot of people with cystic fibrosis are turned off by the thought of counseling. Finding the right counselor can make all the difference.

  5. Creating a Smooth Transition to Transplant Clinic

    By Paul Merritt November 26, 2019

    Since starting the transplant journey, I have learned many things, run into many roadblocks, and been left shocked by other issues.

  6. Facing and Embracing CFRD

    By Megan Lepore November 25, 2019

    Although I didn’t have cystic fibrosis-related diabetes, I avoided dealing with my blood sugars. Now that I do, I feel stronger physically and emotionally.
More Posts View All Posts

Follow Us On

Blog RSS

Interested in sharing your story on the blog?

Learn More