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My Return to In-Person Clinic Visits

By Michelle Herpolsheimer September 14, 2020

After several months of telehealth visits with my care team, I returned to the clinic for an in-person visit. Because of COVID-19, some aspects of the visit were different than before.

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  1. What I’ve Learned From 11 CF Care Centers in 21 Years

    By Jacqui Sjoberg June 18, 2020

    As a military spouse who makes frequent moves, I have had to transition to new cystic fibrosis care centers 11 times in 21 years. Here are three things I have learned to make each changeover work.

  2. A Doctor’s Perspective on CF Care

    By Patrick Flume, MD & Savannah Fuller March 30, 2020

    Patrick Flume, MD, is a pulmonologist and the director of the adult cystic fibrosis center at the Medical University of South Carolina and part of my care team. For National Doctor's Day, I had the opportunity to sit down with Dr. Flume and ask him some questions about CF, his approach to CF care, and how it's changed during his career.

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  3. What I Learned About My Trikafta Weight Gain

    By Meagan Helmick March 6, 2020

    Trikafta has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn’t alone in my concern about my sudden weight gain and that bringing the topic up to my care team didn’t mean that I wasn’t grateful for all Trikafta has done for me.

  4. How Patient Surveys Made Our Care Team More Sensitive to a Single Voice

    By Allison Moreau, BS, RRT February 13, 2020

    The Patient and Family Experience of Care Survey helps cystic fibrosis care teams start formal quality improvement projects, but it also has helped my team become more sensitive to the voices of our patients.

  5. How I Found the Right Mental Health Counselor

    By Nicole Meier January 9, 2020

    A lot of people with cystic fibrosis are turned off by the thought of counseling. Finding the right counselor can make all the difference.

  6. Creating a Smooth Transition to Transplant Clinic

    By Paul Merritt November 26, 2019

    Since starting the transplant journey, I have learned many things, run into many roadblocks, and been left shocked by other issues.
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