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Adding Medical Cannabis to My Care Plan
By
Sydney Sabol
December 8, 2020
After careful thought, I decided to add medically prescribed cannabis to my care regimen. After using it for six months, I’ve noticed an improvement in both my mental and physical health.
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What I’ve Learned From 11 CF Care Centers in 21 Years
By
Jacqui Sjoberg
June 18, 2020
As a military spouse who makes frequent moves, I have had to transition to new cystic fibrosis care centers 11 times in 21 years. Here are three things I have learned to make each changeover work.
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A Doctor’s Perspective on CF Care
By
Patrick Flume, MD & Savannah Fuller
March 30, 2020
Patrick Flume, MD, is a pulmonologist and the director of the adult cystic fibrosis center at the Medical University of South Carolina and part of my care team. For National Doctor's Day, I had the opportunity to sit down with Dr. Flume and ask him some questions about CF, his approach to CF care, and how it's changed during his career.
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What I Learned About My Trikafta Weight Gain
By
Meagan Helmick
March 6, 2020
Trikafta® has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn’t alone in my concern about my sudden weight gain and that bringing the topic up to my care team didn’t mean that I wasn’t grateful for all Trikafta has done for me.
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How Patient Surveys Made Our Care Team More Sensitive to a Single Voice
By
Allison Moreau, BS, RRT
February 13, 2020
The Patient and Family Experience of Care Survey helps cystic fibrosis care teams start formal quality improvement projects, but it also has helped my team become more sensitive to the voices of our patients.
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How I Found the Right Mental Health Counselor
By
Nicole Meier
January 9, 2020
A lot of people with cystic fibrosis are turned off by the thought of counseling. Finding the right counselor can make all the difference.