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Why It Didn’t Matter That My Future Wife Had CF or a Lung Transplant

By Nicholas Kotowski November 12, 2020

I didn’t know until date four that my future wife had cystic fibrosis and was a lung transplant recipient. She was too wonderful for me to care.

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  1. A Late CF Diagnosis Explained Everything

    By Will Geoghegan November 18, 2020

    I had all the classic symptoms of cystic fibrosis, but neither I nor my doctors ever considered them in their totality. The symptoms were treated like separate problems -- asthma, nasal polyps, digestive problems -- until one specialist noticed a tell-tale sign that brought about my clarifying diagnosis.

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  2. Advice to New CF Parents From an Adult With CF

    By Matt Cicardi October 29, 2020

    For parents of a child newly diagnosed with cystic fibrosis, it can be scary to read what’s online about CF. However, I want to shed some light and positivity on what it’s like to have CF. Everyone with CF is different, and it’s possible for your child to lead a full life.

  3. Having a Newborn With CF During COVID-19

    By Jake Ward September 16, 2020

    The recent birth of my son brought me news that I never expected -- a diagnosis of cystic fibrosis.

  4. How I Found Meaning and Purpose in a Late CF Diagnosis

    By Kristina Robinson May 21, 2020

    When I was diagnosed with cystic fibrosis at age 40, I was in denial at first. Then, I compartmentalized my CF, relegating it to a small part of my life. Now I have embraced my diagnosis, and I have become a CF advocate, fundraiser, and blogger.

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  5. How Living in Portugal Led to a Late Diagnosis

    By Marisa Selvakumar April 17, 2020

    After years of health problems and a move to the U.S., I finally was diagnosed with cystic fibrosis at age 27. Once I knew about this disease, it was important to me that my family and friends -- and even my old doctor -- in the Azores know about it too.

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  6. Learning That CF Isn’t My Fault

    By Autumn Dawson Mathis January 30, 2020

    After years of being in a deep depression, one little revelation from my therapist made all the difference in how I faced the traumas in my life.
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