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NICU Advice From a Mom of a Newborn With CF
By
Jenessa Kildew
August 17, 2021
Having a baby spend a long time in the NICU is difficult. Here are some things I learned about how to deal with it.
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Looking Back at the First Year After My Son’s CF Diagnosis
By
Jake Ward
June 18, 2021
It’s been a whirlwind year since my son was born and diagnosed with cystic fibrosis. Despite the surgeries, hospital stays, and challenges of living with the disease every day, I’m thankful for the people who helped pave the way.
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Blindsided by CF at 52
By
Todd Irwin
March 22, 2021
In 2020, I went from having almost no knowledge about cystic fibrosis to the shocking revelation that I’ve actually been battling CF my entire life. At 53 years old, I’m still a work in progress, but I’m facing this new diagnosis head-on.
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What It’s Like to Have CF in Pakistan
By
Raheema Arbi
March 11, 2021
Living in Pakistan, I didn’t know I had CF until I was 18 years old. After absorbing a big emotional blow, I started to fight back.
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Advice for New Parents of a Child With CF
By
Marykate Armstrong
March 8, 2021
I was heartbroken when I learned my baby would be born with cystic fibrosis. However, my son’s CF care team changed my perspective and connected me with other mothers of children with CF who became lifelines of support for me.
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Talking to Our Son About His Baby Sister’s CF
By
Jamie Rudnycky
February 25, 2021
We’ve only lived with our daughter Louisa’s CF diagnosis for six months. Besides adjusting to her treatments and care needs, our priority has also been to talk openly about this new normal with Louisa’s older brother -- in ways a 3-year-old can understand.