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Creating a Smooth Transition to Transplant Clinic

By Paul Merritt November 26, 2019

Since starting the transplant journey, I have learned many things, run into many roadblocks, and been left shocked by other issues.

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  1. Diagnosed With CF at 47

    By Kathy Norris May 2, 2019

    I can’t say I was happy to get this diagnosis, but I was definitely relieved to have answers. At least I knew who I was in the ring with.

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  2. The Family I Never Wanted

    By Elise Free January 23, 2019

    When my daughter was diagnosed with cystic fibrosis, our nurse looked at me and said, “Welcome to the family!” Although I wanted to punch her otoscope lights out at the time, I think I’m finally starting to understand what she meant 13 years later.

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  3. CF Is Nothing But a Plot Twist in Eden’s Story

    By Emili Combest December 20, 2018

    Our dream for our daughter, Eden, is the same one that parents have for their kids who don’t have cystic fibrosis. We want her to be happy and realize her true potential.

  4. Choosing How I Approach My Daughter’s Diagnosis

    By Nicole K. Montez November 2, 2018

    When my daughter was diagnosed with cystic fibrosis as a newborn, I was shattered. But then, I decided I would raise her to know that CF was something she had, not who she was.

  5. How a Late Diagnosis Made Me Strong

    By Autumn Dawson Mathis October 24, 2018

    With a late diagnosis, I had every reason to feel hopeless and alone, but getting involved and connecting to others truly gives me hope for my future.

  6. 5 Things I’d Tell a Parent of a Child Newly Diagnosed With CF

    By Leah Chase September 4, 2018

    Having lived with cystic fibrosis for 47 years, I want to pay it forward and share the life lessons I’ve learned with new parents of children with CF.
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