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The Unseen Struggles of CF

By Lindsey Tipsword April 13, 2021

The physical symptoms of cystic fibrosis can be debilitating. But the emotional trauma brought on by hurtful comments, financial burdens, and anguish my loved ones have faced because of my disease has been just as painful.

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  1. At Any Age, a Legacy Gift for CF Is Everlasting

    By Jonathan McTague December 14, 2020

    Having a friend with cystic fibrosis has made me determined to do all that I can to help her fight for a cure. That includes leading the charge for making legacy donations to the Cystic Fibrosis Foundation.

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  2. CF Is Nothing But a Plot Twist in Eden’s Story

    By Emili Combest December 20, 2018

    Our dream for our daughter, Eden, is the same one that parents have for their kids who don’t have cystic fibrosis. We want her to be happy and realize her true potential.

  3. Why I Am Thankful for 30 Years of Great Strides

    By Randi Gleason August 13, 2018

    As I reflect on the 30th anniversary of Great Strides and my 35-year journey living with cystic fibrosis, I celebrate all the CF community has accomplished together and am thankful to be able to share my story as a 2018 National Ambassador.

  4. What Do I Do After VLC Is Over? Keep Sharing My CF Story

    By Bonnee Binker April 12, 2018

    With another fantastic Volunteer Leadership Conference (VLC) in the books, I want to share some of the things we learned and how we can keep the momentum going through National Volunteer Week, and all year long.

  5. How Everyone Can Be a Part of VLC

    By Paul Motenko March 5, 2018

    Caring for somebody with CF used to be a lonely journey. But that changed after I attended the first Volunteer Leadership Conference (VLC). I have attended the conference every year, and this year as a co-chair of the 15th VLC, I'm welcoming everybody to livestream it so we can share and learn together.

  6. A Mountain for Avalyn

    By Brittany Mahoney February 13, 2018

    The night of our first cystic fibrosis-related fundraising gala was memorable in more ways than one. Thanks to new friendships, I got the chance to honor my daughter with CF in a special way.
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