Carolyn Kilkus

Carolyn Kilkus
Video Manager, Cystic Fibrosis Foundation
Carolyn-Kilkus

In her role as video manager, Carolyn produces and directs most of the Foundation's video content. Her love and passion for video goes hand-in-hand with her love and passion for sharing the stories of people with CF and helping to spread awareness of the disease. Carolyn earned her B.S. in mass communications from Frostburg State University in Frostburg, Md. She currently lives in downtown Bethesda, Md., with her husband Jay.

Blog Posts

Carolyn-Kilkus-Giddens-Family-Featured-Rectangle

In this “Living Today” video, we learn how Carrie Giddens, a 30-year-old with CF, and her husband, Craig, decided to have their first child through IVF and surrogacy.

| 1 min read
Carolyn-Kilkus-Jordan-Scott-Featured-Rectangle

Our next “Living Today” video features Jordan Scott, 22, whose biggest challenge involves gaining weight. But through her love of studying nutrition, she's been able to overcome her fear of the inevitable: a feeding tube.

| 2 min read
Carolyn-Kilkus-Rachel-Kinney-Hopkins

Learn how Rachel Kinney fits studying for a computer science major, an active social calendar and daily cystic fibrosis treatments into her life.

| 2 min read
Carolyn-Kilkus-Wes-Parsel-Cameras

In our first 2016 “Living Today” video, Wes Parsel, 27, talks about almost everyone's New Year resolution: exercise. The big difference is that he's been doing this his whole life, in addition to his daily treatment routine. 

| 2 min read
Carolyn-Kilkus-Andy-Lipman-with-Kids

In our newest “Living Today” video, Andy Lipman, 42, describes how he's created a positive spin on coping with a life-shortening disease. 

| 1 min read