Dorothee Marx

Dorothee Marx
Adult with CF
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Born in Germany, Dorothee was diagnosed with cystic fibrosis at birth. She has always tried not to let her CF stop her from enjoying life. She loves traveling and learning new languages. After graduating high school, she completed a volunteer service in a parish in Stockholm. She lives near the Baltic Sea with her husband and works as a junior lecturer in American literature at Kiel University. She is pursuing her PhD with a dissertation on representations of time and disability in contemporary American literature. She tweets about life with CF on Twitter.

Blog Posts

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Understanding that I suffered trauma from medical encounters during my childhood helped make me a more effective self-advocate as an adult.

| 7 min read
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Cystic fibrosis, life expectancy, and my struggle with the “seize the day”-paradigm.

| 6 min read
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Some days, the biggest struggle I have is accepting that I have CF.

| 4 min read