Joey Disser

Joey Disser
Adult with CF
Joey-Disser-Headshot

Joey, 31, was diagnosed with CF shortly after birth. He has participated in numerous clinical trials and research studies. When he is not working as a hospitalist nurse practitioner, he is most likely spending time with his daughter and the rest of his family, taking classes, or creating art.

Blog Posts

Joey-Disser-Pain-Management-Featured-Rectangle

As a medical professional who has cystic fibrosis, I have experienced both sides of pain management and chafed under the new rules for prescribing pain medications brought about by a nationwide opioid crisis. Despite having to add yet another doctor to my long list of providers, a trip to a pain management specialist wasn't as bad as I thought.

| 7 min read
Joey-Disser-RARE-study-Featured-Rectangle

Participating in the RARE study gave me an opportunity to play a role in finding a therapy that one day could help me and other people with CF who have two nonsense mutations.

| 7 min read