Morgan Barrett

Adult with CF

Morgan lives with her husband, Kory, and twin toddlers, Alder and Winslow, in rural northeast Kansas where she enjoys gardening and chicken-keeping. She has many interests and is always entertaining her curiosity, but her mainstays are spending time outside, reading, writing, photography, and cultivating a relationship with plants. She grew up with two younger siblings, Allison and Mason, who also live with CF. You can follow her on Instagram. P.S. Beets, Bears, Battlestar Galactica.

Blog Posts

Morgan smiling with her twin toddler sons

I was recently reminded of what my life used to be like before Trikafta^® — and I immediately felt guilty for forgetting. But maybe it’s OK to let go of the past and embrace a future of hope.

May 2, 2024| 5 min read

Morgan sitting on a bench outside with her two twins.

I have learned a lot about myself in the three years since I started Trikafta^®. Even though I am healthier, I feel less connected to the cystic fibrosis community and my care team.

March 30, 2023| 5 min read

Morgan and her husband smiling holding their twins outside.

After opening up a time capsule that I put together when I was 7 years old, I decided to write my childhood self a letter, explaining how great her life is when she is 30.

Aug. 16, 2022| 6 min read

Morgan Barrett outside smiling in a selfie photo.

Now that I am feeling healthy on Trikafta^®, I no longer feel special for thriving despite the challenges of cystic fibrosis. I don’t feel like I belong in the CF community anymore, and I miss that sense of camaraderie that comes from a shared struggle.

March 10, 2022| 7 min read

Morgan-Barrett-Husband-Twins-Featured-Rectangle

Because of the shortened life expectancy projected for those with cystic fibrosis, I was always cautious about the idea of having children. Those fears melted away after I started Trikafta® and received the greatest surprise of my life.

Feb. 19, 2021| 7 min read