Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Are you looking to incorporate a new food or ingredient into your diet this season? Well, look no further!
Suzanne Michel, M.P.H., RD, LDN
September 11, 2015
The Pre-wait Waiting Game
My Small War Against the Feeding Tube
Fall is that time of year when we start thinking about cooler weather and new recipes to get us through the season. One key fall food -- and ingredient -- that you may have overlooked is the avocado.
The avocado is a great food for everyone -- especially those who have CF. It is high in fat, but the healthy kind. Most of the fat in avocados is monounsaturated, and eating a diet with a variety of healthy fats is important for everyone, including people
with CF. Avocados are also high in vitamins, minerals and fiber.
Avocados are a really good first food for babies too. Talk to the registered dietitian at your child's CF center about when to start offering it to them. Make sure the avocado is ripe (see the section below, “How to Use It,” for tips), mash a small piece
and feed it to them using a spoon. When your baby becomes a toddler, they can practice fine motor and eating skills by picking up ripe pieces of avocado and self-feeding.
When you buy avocados they are usually green and hard; they cannot be eaten that way. You will need to let the avocado sit at room temperature for a few days. You'll know it is ripe and ready to eat when the skin turns black or dark purple and feels soft
when you apply gentle pressure. If the avocado at the market is already soft and you don't plan to use it that very day, don't buy it.
If the avocados you have at home are already ripe but you want to wait a day or two to eat them, simply put them in the refrigerator. And if your avocado isn't ripe yet and you have friends coming over the next day, put the unripe avocado into a paper
bag with a fresh apple or banana and leave it on the counter. This will make it ripen faster.
Many people think of guacamole when they see avocados, and making it doesn't need to be complicated. Simply put the soft “meat” of the avocado in a bowl and mash it using a fork. Then, add salt, pepper, the juice of a lime or half a lemon and serve with
crackers or chips. Of course, you can also find all kinds of really fancy guacamole recipes on the Internet. Use the guacamole on sandwiches just as you would with mayonnaise, or make it as a great topping for burgers and salads.
But avocados are really good for so many other recipes, too. Try this one, for example!
Fat Man Shake
Submitted by Susan H. for Chef4CF
Suzanne Michel, M.P.H., RD, LDN
Registered Dietitian and CF Nutrition Specialist
Suzanne is a registered dietitian and clinical assistant professor at the Medical College of South Carolina, a leading CF center in Charleston, S.C. Suzanne has more than 30 years of experience working directly with people who have CF.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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