Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Mary Duggan Lee Watson, a longtime coach, doesn't mind taking on adversity. When her granddaughter was diagnosed with CF, she decided to fight the disease doing what she loved: sports.
Mary Duggan Lee Watson
November 7, 2016
How I Got My Mom to See Me as an Adult in Charge of My Own CF Care
10 Things That Are Stressing Me Out More Than My Son’s CF
I have never been one to allow adversity to get in my way. When I started my career coaching athletics 40 years ago, I made a point of championing causes that weren't a priority at the time, such as women's athletics programs. I turned a few heads and ruffled a few feathers back in 1972 when I was a high school coach, tossing the old women's tunic-style gym uniforms in favor of more practical and “un-ladylike” shorts and T-shirts. It didn't matter that it wasn't a popular opinion at the time, I only wanted what was best for my students.
When our granddaughter, Campbell Lee, was born with cystic fibrosis in 2010, I was once again up against adversity. I needed a place to channel my anger and my energy. I wanted to fight against CF like I fought against so much in my earlier athletic career. I wasn't creative and had no real marketing skills, but I wanted to
spread awareness about CF and
take some sort of action for Campbell Lee. I turned to the thing I loved best: sports.
My husband, Paul, and I started holding various athletic fundraising events for CF in the South Coast of Massachusetts, including running basketball clinics in area schools. Every clinic, I hang a Cystic Fibrosis Foundation banner with a picture of my granddaughter on it. I put a bucket on the basketball court, and the kids make donations -- some feel bad that they can't give more. I tell them not to worry, because one day they will all be NBA stars and can donate more then.
For six years, we have been running these basketball clinics, doing silent auctions and continually spreading awareness about CF. Along the way, we have raised thousands of dollars for the CF Foundation, helping with the mission to find a cure.
Next month, I will be inducted into my sixth Hall of Fame at the New Agenda Northeast, which honors women who have helped advance the role of women in sports in New England. It's a true honor and I'm humbled, but what I'm most proud of is my work for the CF Foundation. I plan to keep doing what I love for the one I love: using sports to spread the word about CF and the continued need for a cure for people like my granddaughter Campbell Lee.
Mary Duggan Lee Watson
Grandmother of a child with CF
Mary is the grandmother of Campbell Lee, a 6-year-old with CF. She is a basketball coach using her athletic talents to raise funds and awareness for CF. Mary lives next door to her granddaughter in W. Bridgewater, Mass., with her husband and dog, Fin.
Share this Post
This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
Follow Us On
With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
Sign up for our emails