Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Read how one grandmother is adding tomorrows.
April 1, 2016
How Bruce Lee Saved my Life
Meet Jordan Scott
I have been fortunate to spend time with Anne, a wonderful woman and the proud grandmother of Graham, who lives with cystic fibrosis. For quite some time, Anne has been honoring her grandson with gifts to the Cystic Fibrosis Foundation. Recently, she joined with others who have taken a similar step by leaving a gift for the CF Foundation in her will and family trust.
The CF cause is very near and dear to Anne's family, but it goes beyond that. She has gotten to know many other grandparents and families of people with CF. She believes the Cystic Fibrosis Foundation is one of the most efficient organizations of its kind and that the scientists are making discoveries that will someday lead to the one-time cure.
As Anne shared with me, at a young age she learned a motto, “What we keep we lose. Only what we give remains our own.” She is making a gift through her will in honor of Graham and in the hope of finding a cure for everyone living with CF.
The most popular ways to make a legacy gift and add more tomorrows for people with CF involve steps that are easy to accomplish. Most require simply naming the CF Foundation on a beneficiary form and signing your name to complete. There is no minimum donation and you can change your beneficiaries at any time.
If you are considering expressing your hopes and dreams for the future through a legacy gift, I want to connect with you. I would love to hear your story. And notifying us of your plans is the best way to ensure that your wishes for the use of your gift are honored. You can reach me at email@example.com or 240-482-2845.
Learn more about making a legacy gift.
Senior Director of Planned Giving, Cystic Fibrosis Foundation
Tricia recently joined the Cystic Fibrosis Foundation as senior director of planned giving. A native Tennessean, Tricia is a graduate of Vanderbilt University School of Nursing and has a master’s degree in maternal and child health from Emory University. She spent many years in nursing and health care roles before moving into fundraising and philanthropy. Working with our donors who plan a legacy gift through their will, trust or by beneficiary designation is a great honor and privilege. Every gift has significant meaning and every story is so special. Contact Tricia at firstname.lastname@example.org or 240-482-2845.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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