Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Two doctors who worked with Dr. Warren Warwick reflect on his contribution to CF care and its lasting impact.
Preston W. Campbell, III, M.D.
February 19, 2016
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It is with a heavy heart that I share the passing of Warren J. Warwick, M.D., who died on February 15, 2016. Dr. Warwick had a profound and lasting impact on the Cystic Fibrosis Foundation through his scientific expertise and his longstanding commitment to his patients.
In 1964, the Foundation asked him to gather data on every patient treated at any of the then 31 accredited care centers to identify the best treatments. From that project sprung the CF Foundation's Patient Registry, which is at the very heart of our model of care and its focus on continuous quality improvement. As a long-time care center director in Minnesota, his commitment to asking more of himself, his colleagues and his patients to improve their health and the quality of their lives set an example for all of us to emulate.
David N. Cornfield, M.D., and Carlos Milla, M.D., are distinguished pediatric pulmonologists who worked closely with Dr. Warwick. They have kindly permitted me to share some of their words, which so thoughtfully capture Warren's inspiring leadership and innumerable contributions to the CF community.
A dedicated and treasured member of the University of Minnesota faculty from 1960 until 2011, Dr. Warwick made seminal contributions to the fields of pediatrics and cystic fibrosis. His investigative pedigree included mentorship in immunology from Dr. Robert Good and collaborations in infectious disease with Dr. Paul Quie. As a keen pulmonary physiologist, Dr. Warwick was among the first to consider a mechanical approach to bronchial drainage and conceived of the percussive vest to loosen mucus in the lungs of children and adults with CF, an invention that is in use worldwide.
Evidence of Dr. Warwick's prescience is embodied in his report, published in 1968 in Minnesota Medicine, the journal of the Minnesota State Medical Association, in which he proclaimed that the federal government and voluntary agencies should combine resources to "solve the problems of inadequate facilities and funds for care of children (with CF) …for research into pathogenesis and educational programs for physicians and paramedical professionals." His call to action has in many ways proved prophetic.
Though Warren was often thought iconoclastic, his theories [regarding CF care] were often proved over time to be correct. He articulated -- with clarity and force -- his positions on the importance of nutrition, chest physiotherapy and a commitment to daily care, along with the role of big pharma in medicine and, above all, the central importance of the physician-patient, family relationship, well before these ideas gained mainstream acceptance. He was an inspired inventor and tinkerer, completely committed to making the lives of people with cystic fibrosis better. His eyes were on the horizon even while seeing exactly what was directly in front of him.
Warren J. Warwick worked, every day of his adult life, to make life better for others. His commitment, passion and clarity will be missed.
We are proud to remember Dr. Warwick today for his many important contributions to the CF community and the tremendous difference he has made in the lives of people with CF. We continue in his footsteps and with the benefit of his outstanding and enduring example of compassion, commitment and excellence in the service of all people with CF.
Preston W. Campbell, III, M.D.
President and CEO, Cystic Fibrosis Foundation
Dr. Preston Campbell is the president and chief executive officer of the Cystic Fibrosis Foundation. He previously served as the Foundation’s executive vice president for medical affairs. Dr. Campbell has more than 25 years of experience caring for people with CF. Most recently, he oversaw the Foundation’s research, drug discovery, drug development and clinical research programs, and directed clinical research, the Foundation’s network of care centers, clinical training programs and the national patient registry database. He initially became interested in cystic fibrosis as a CF camp counselor while earning his medical degree from the University of Virginia Medical School.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. It is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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