Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
As I reflect on the 30th anniversary of Great Strides and my 35-year journey living with cystic fibrosis, I celebrate all the CF community has accomplished together and am thankful to be able to share my story as a 2018 National Ambassador.
August 13, 2018
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One of the greatest feelings we can have as humans is knowing we are making a difference.
As we reach the middle of the year, it's a wonderful time to celebrate the difference we have made for our community so far during this 30th year of Great Strides. Personally, mid-year is my favorite time to thank those who have given their time, talent, and passion to work toward a cure for cystic fibrosis. Not only is it a great time to remind people of what they're giving back by supporting the CF Foundation, but it also leaves me thinking about all of the other things I can do to increase awareness and fundraising in the remaining five months.
For example, I have found that simple actions such as writing thank-you letters, posting walk day photos to social media, and simply sharing your Great Strides experience allows others to feel the same sense of community and friendship found at walks across the nation.
For those who are still anxiously waiting for their Great Strides walk day to arrive, I encourage you to continue telling your story, whether in person or on social media. Encourage others to participate with you and make the last stretch before the Great Strides walk count!
Thanks to our CF community, the ideas for making an impact are plentiful -- and there's still time to continue our efforts to meet our personal, local, and national Great Strides goals for 2018.
While donations are always useful, fundraising has also been therapeutic for me during my 35-year journey with CF. I remember participating in Great Strides with my friends as a little girl and feeling so inspired. I felt empowered returning to my everyday CF routine because I felt the support from those closest to me. Fast forward 35 years and it's even more special to see the children of my childhood friends striding right along with us. It has delivered hope to my heart and joy to my spirit to know that what we do is making a difference for our generation and the ones to come.
So, in the few remaining months of 2018, will you join me? I'd love to hear your ideas and what you're doing to make this your best fundraising year ever.
Adult with CF
Randi lives on Toledo Bend Lake with her husband, Darold. This fall, they will celebrate 14 years of marriage. Randi has served her local communities in various capacities including three terms on her local school board. Randi has a degree in marketing/public relations and has been self-employed for 15 years. As a Pink Cadillac Director with Mary Kay Cosmetics, she recently received the company's most coveted award, Miss Go-Give in 2018, honoring her spirit to help others succeed. She and Darold spend their free time on the golf course and on the lake.
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This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.
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