What You Need To Know

Blog Post

Consider Tube Feeding

Tube feeding can be a great way to get the calories and nutrients that you or your child with cystic fibrosis need to gain and maintain a healthy weight. Far from a “last resort,” tube feeds can also relieve the stress of mealtime.

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  1. Article

    How to Manage Your Feeding Tube

    You will work with your cystic fibrosis care team to make a schedule that works best for you, whether that is between meals, all day or overnight.

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  2. My Small War Against the Feeding Tube

    Why do we feel like failures if we can’t get our children to gain weight and have to concede the battle against the feeding tube?

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  3. Download

    Understanding Tube Feeding

    This booklet from the Ann and Robert H. Lurie Children’s Hospital of Chicago provides advice and tips on tube feeding and shares personal stories from people with cystic fibrosis and their families.

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  1. Resource

    How to Set up a Feeding Tube

    In this video, watch how Jordan Robison, an adult living with cystic fibrosis, sets up her feeding tube before she goes to bed.

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  2. Blog Post

    Meet Jordan Scott

    Our next “Living Today” video features Jordan Scott, 22, whose biggest challenge involves gaining weight. But through her love of studying nutrition, she’s been able to overcome her fear of the inevitable: a feeding tube.

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  3. Blog Post

    How a G-Tube Unlocked My Son’s Potential

    After deciding to get a gastrostomy tube for our son, my husband and I made sure he was prepared for the procedure. What we weren’t prepared for was the difference it made in his health, energy levels, and personality.

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