Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
CF Advocates Make Their Voices Heard in 2010
December 21, 2010
This year, Cystic Fibrosis Advocates inspired new champions in Washington, D.C. and in state capitols across the country to take action on critical CF related issues.
Managing CF-Related Diabetes Through Early Diagnosis and Treatment – 2010 NACFC
November 19, 2010
Because of advances in treatment and care, today 47 percent of all people with CF are over the age of 18. Meeting the needs of this growing population was a prominent topic at this year’s North American Cystic Fibrosis Conference.
New England Journal of Medicine Publishes Study about VX-770 — A Promising Drug That Targets Underlying Defect in CF
November 17, 2010
November 17, 2010 The New England Journal of Medicine, the world’s most influential and widely read medical periodical, features a study this week about a Phase 2 clinical trial of VX 770, an oral drug in development that targets the root cause of cystic fibrosis.
New Inhaled Antibiotic Cayston® Gains Rapid and Broad Acceptance – 2010 NACFC
November 15, 2010
A key focus of this year’s North American Cystic Fibrosis Conference (NACFC) was the progress of the more than 30 potential new therapies moving through the CF Foundation’s drug development pipeline.
Care Centers Partner with Patients and Families to Improve Care – 2010 NACFC
November 9, 2010
A recurring theme at the 2010 North American Cystic Fibrosis Conference was the key role of people with CF and their families in improving CF care.
Vertex Begins Clinical Trial to Evaluate Combination of VX-770 and VX-809 Targeting Most Common Mutation in CF
October 18, 2010
Vertex Pharmaceuticals today announced the initiation of a clinical trial that will evaluate –– for the first time — combinations of VX 770 and VX 809, two oral drugs in development that target the underlying cause of CF.
President Obama Signs Improving Access to Clinical Trials Act Into Law, Finalizing a Major Achievement for CF Advocates
October 8, 2010
On Oct. 5, President Obama signed the “Improving Access to Clinical Trials Act” into law. This legislation, which passed the U.S. Senate on August 5 and the U.S. House of Representatives on September 23, will enable patients with rare diseases to participate in clinical trials without losing eligibility for public health care benefits.
Improving Access to Clinical Trials Act Passes U.S. House, Heads to President for Signature
September 23, 2010
September 23, 2010 Today the U.S. House of Representatives passed the “Improving Access to Clinical Trials Act” (I ACT), in a victory for the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations.
Michigan Teens Give U.S. Senator a Glimpse of Life with CF
August 20, 2010
Emily and Molly Bonnell welcomed Michigan Sen. Debbie Stabenow into their home to show her what their day to day lives are like as teens with CF.
Improving Access to Clinical Trials Act Passes U.S. Senate in Victory for CF Advocates
August 6, 2010
The U.S. Senate last night passed the “Improving Access to Clinical Trials Act” (I ACT), a bipartisan piece of legislation championed by the Cystic Fibrosis Foundation, its advocates and 120 other health advocacy organizations.
U.S. News & World Report: A CF Care Center Excels and Uses CFF Tools to Get There
July 27, 2010
"For a child with cystic fibrosis, every breath is a small victory in a never ending battle," begins a story in the August issue of U.S. News & World Report, on newsstands today.
New Drugs and Better Treatments Lead to Longer Lives for People with CF, Marketwatch.com Story Says
July 26, 2010
There is no cure for cystic fibrosis, but treatment advances are paying off for people with cystic fibrosis, who are living longer and living better, according to a story in Marketwatch.com today.
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