Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
It was the year of 1957 when Phyllis Kossoff, one of the earliest volunteers of the Cystic Fibrosis Foundation and mother of a child with CF, found herself standing before a room of women, asking for help.
Published on March 7, 2013
The sisters of DPhiE at Drexel University crown the newest Deepher Dude following the male beauty pageant competition.
It had been two years since Phyllis and other parents banded together to create the CF Foundation. It was clear they needed to take the next step and raise funds to support their search for a cure. So Phyllis turned to her sisters - the women of Delta Phi Epsilon International Sorority - and asked them for help.
More than five decades later, the sisters of Delta Phi Epsilon, also known as DPhiE, continue to offer their support. Through Great Strides walks, 65 Roses Galas and a variety of other fundraisers, the sisters spread awareness of CF and raise funds on behalf of the Foundation at 90 chapters across the country and in Canada.
Drexel University DPhiE Raises $47,000 in a Male Beauty Pageant
This February, hundreds of students, faculty, friends and family gathered to support the CF Foundation's mission and watch over a dozen men from Drexel's fraternities and wrestling team compete to be crowned the next Deepher Dude. Now in its ninth year at the University, the male beauty pageant is a campus favorite and, this year, raised an amazing $47,000 toward the search for a cure for CF.
Opening the evening was Emily Kramer-Golinkoff, 28, who has CF. Emily spoke candidly to the audience about what it's like to live with cystic fibrosis, saying, “Unlike so many of my peers making snarky remarks about reaching 30 and being 'over the hill,' you'll never find me complaining about getting older.”
The room listened silently, taking in every word she spoke. “We have come so far, and we're so close,” she continued. “But it's up to people like you to help us reach the finish line.”
The men took the stage to compete in categories like talent, swimwear and formalwear, and even fought for the title by participating in a jump-rope contest. After each round, the sisters raffled off gift baskets, gift cards and nights out on the town.
The male contestants also did some fundraising of their own - hosting smaller events, like late-night barbeques, to raise money.
University of Miami DPhiE Turns up the Heat on its Fundraising
The sisters of the University of Miami pose for a
picture with Delaney, 2, who has CF, at their Hoops
for Hope basketball tournament.
Featuring a “Hoops for Hope” basketball tournament, “Jail 'N' Bail” fundraiser, jousting tournament and Deepher Dude competition, the sisters made sure CF was the talk of the campus all weekend, raising an amazing $30,000.
The chapter's Deepher Dude was a huge hit, with 12 men participating from the school's fraternities. Joining the judging panel was Bonnee Binker, volunteer at the CF Foundation's South Florida Chapter, and grandmother to Delaney, 2, who has CF.
Each contestant was tasked with serenading the toddler with an original song that spoke about cystic fibrosis, Delta Phi Epsilon and Delaney. The men were then judged based on how well they met all three criteria.
The evening also featured a live auction, which sold a trip to a timeshare in Disney World, a night out in Miami's Coconut Grove and a DPhiE-manned car wash for all campus fraternities.
“Delta Phi Epsilon's continued commitment to the CF cause is truly amazing,” said Ann Palmer, senior vice president of field management for the CF Foundation. “Many of these women have no immediate connection to CF, and they continue to work tirelessly to support the Foundation's mission. We couldn't ask for better partners in our fight to cure and control this disease.”
Share this Page
Follow Us On
With more than 70 chapters and offices across the country, there are plenty of ways to get involved.
Cystic Fibrosis Foundation
4550 Montgomery Ave.
Suite 1100 N
Bethesda, MD 20814
800-344-4823 (toll free)
Sign up for our emails