Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many cystic fibrosis patients and families face complicated issues related to getting the care they need. But CF Foundation Compass makes sure that no one has to do it alone.
For many people with cystic fibrosis, dealing with insurance is as much a part of living with the disease as nebulizers and vests. Many people with CF and their families face issues related to getting the care they need, but no one has to do it alone.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Recipients include eight innovative programs from around the country that serve the CF community.
Published on October 10, 2018
The Cystic Fibrosis Foundation has announced the recipients of its third annual Impact Grants. The Impact Grants program provides grants of up to $10,000 per year to individuals or organizations for programs that benefit and empower the cystic fibrosis
The 2018 grantees are bettering the lives of people in the CF community through a range of programs from exercise to life coaching and professional development. In addition to the eight new grants in 2018, three 2017 Impact Grant recipients had their
projects renewed for one year.
Recipients were chosen by the CF Adult Advisory Council (AAC), an external panel composed of adults with cystic fibrosis, in partnership with the CF Foundation.
3rd Street Society: Cystic Fibrosis Surf Clinics
The 3rd Street Society's Cystic Fibrosis Surf Clinics, based in Folly Beach, S.C., contribute to the health and happiness of people with CF by providing a half day of one-on-one surfing instruction for people
with CF and two of their family members or friends in a safe and fun environment.
Alchemy of Life: Transformational Life Coaching
Alchemy of Life: Transformational Life Coaching provides one-on-one sessions for people with CF who are looking to confront challenging life circumstances and establish goals for growth and
wellness. The program is guided by the idea that emotional and spiritual wellness is just as important as physical wellness for those with CF.
Breathe for Britt Run Club
Breathe for Britt Run Club is an online community for people with CF and family members that promotes the benefits of running and walking, and provides access to resources to track and achieve measurable
fitness goals, such as completing a 5K. The program will launch in 2019 and will include a personalized 12-week training program, access to a running coach, and fitness tracker technology.
CF Yogi is a virtual yoga studio with weekly livestreamed yoga classes led by instructors who have firsthand knowledge of yoga and CF and its value as a self-empowering tool for those living with the disease. Classes
are open to adults and kids with CF, parents and caregivers, spouses, families, and friends.
Coach-Ed: Exercise and Wellness Sponsorships
Exercise and Wellness Sponsorships support and empower people with CF to incorporate physical activity into their daily lives to manage the physical and emotional aspects of CF, as well as everyday stresses. The program provides financial sponsorships
for people with CF to participate in fitness-related activities and guidance to find the right sport for each individual.
Cystic Fibrosis Reproductive & Sexual Health Collaborative
The Cystic Fibrosis Reproductive & Sexual Health Collaborative (CFReSHC) invites women with CF to partner with health care providers and researchers to help shape the future of CF research on sexual and reproductive
health issues. CFReSHC holds monthly virtual meetings for women with CF to share their experiences, help identify knowledge gaps, and formulate key research questions to inform patient-centered research projects.
Cystic Fibrosis Fitness Institute: Improving Quality of Life for People With CF Through Exercise
The Cystic Fibrosis Fitness Institute's 9-month online exercise program improves the quality of life of people with CF through strength, endurance, and breathing-based workout options, including exercise videos,
monthly workouts, and live Q&A sessions.
Kronic Young Professional Network: CF Young Professional Pilot Program
Kronic Young Professional (KYP) Network's CF Young Professional Pilot Program helps young adults with CF gain the knowledge and tools they need to successfully establish professional careers and navigate the unique challenges they face. The program provides
an online hub for educational resources about workplace accommodations, techniques for self-advocacy, and an interactive support forum for those entering the workforce.
The 2019 Impact Grants submission period will open in January. For more information about the Impact Grants program, visit cff.org/ImpactGrants.
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