Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Chad Riedy and Jaclyn and Drew Strube will help lead the Cystic Fibrosis Foundation's advocacy work to inspire action and help shape public policies that help people with CF access high-quality, specialized care.
Published on March 28, 2018
The Cystic Fibrosis Foundation is proud to announce that Chad Riedy and Jaclyn and Drew Strube will be our new national advocacy chairs. In this role, they will work with the Foundation to spearhead advocacy campaigns that support people with CF and serve as spokespeople to make sure elected officials are aware of the needs of the CF community.
“We are honored to have Chad, Jaclyn, and Drew serve as leaders in our fight for adequate, affordable health care,” said Mary Dwight, SVP of policy and advocacy at the CF Foundation. “Through their steadfast dedication and passion, we know they will help pave the way for a better future for all people with cystic fibrosis and their families.”
Jaclyn and Drew Strube have been involved in CF advocacy for several years and have quickly become leading voices in the community. They are parents to 3-year-old Major, who has cystic fibrosis, and are also frequent contributors to the CF Community Blog. They live in Des Moines, Iowa.
Chad Riedy, an adult living with CF, has played a key role on the CF Foundation's Adult Advisory Council and is an influential voice on social media, serving as a host of the YouTube channel, Staying Salty. He is a father to two boys and is also a dedicated fundraiser. He lives in Alexandria, Va. with his wife and sons.
Riedy and the Strubes are succeeding Rebecca Schroeder and Melissa Shiffman, who began serving as the CF Foundation's national advocacy chairs in 2015. Melissa was diagnosed with cystic fibrosis at the age of 5, and was given the 2018 Alex Award, the highest honor the CF Foundation awards to members of the community. Rebecca, who stepped down as chair in December 2017, is the volunteer chair of the Great Strides walk in Spokane, Wash., and serves on the Parent/Family Advisory Board for the CF clinic at Sacred Heart Hospital in Spokane.
To stay informed about the Foundation's advocacy work and get involved, text “FIGHTCF” to 52886 or sign up for the CF Foundation's Advocacy Alerts.
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