Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease.
CF is a rare genetic disease found in about 30,000 people in the U.S. If you have CF or are considering testing for it, knowing about the role of genetics in CF can help you make informed decisions about your health care.
If you or your child has just been diagnosed with cystic fibrosis, or your doctor has recommended testing for CF, you may have many questions.
Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.
Raising a child with cystic fibrosis can bring up many questions because CF affects many aspects of your child’s life. Here you’ll find resources to help you manage your child’s daily needs and find the best possible CF care.
Living with cystic fibrosis comes with many challenges, including medical, social, and financial. By learning more about how you can manage your disease every day, you can ultimately help find a balance between your busy lifestyle and your CF care.
People with CF are living longer, healthier lives than ever before. As an adult with CF, you may reach key milestones you might not have considered. Planning for these life events requires careful thought as you make decisions that may impact your life.
People with cystic fibrosis are living longer and more fulfilling lives, thanks in part to specialized CF care and a range of treatment options.
Cystic Fibrosis Foundation-accredited care centers provide expert care and specialized disease management to people living with cystic fibrosis.
We provide funding for and accredit more than 120 care centers and 53 affiliate programs nationwide. The high quality of specialized care available throughout the care center network has led to the improved length and quality of life for people with CF.
The Cystic Fibrosis Foundation provides standard care guidelines based on the latest research, medical evidence, and consultation with experts on best practices.
As a clinician, you’re critical in helping people with CF maintain their quality of life. We’re committed to helping you partner with patients and their families by providing resources you can use to improve and continue to provide high-quality care.
As part of the Cystic Fibrosis Foundation's mission to help improve the lives of people living with cystic fibrosis, the PSDC initiative taps the CF community to inform key efforts to support the management of daily care.
Your cystic fibrosis care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Many people living with cystic fibrosis and their families face complicated issues related to getting the care they need. Cystic Fibrosis Foundation Compass makes sure that no one has to do it alone.
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
CF care team members are paramount in providing highly specialized care to people living with CF. CF Foundation Compass can help by serving as a strategic ally for care teams, so team members can focus on their patients’ care.
CF Foundation Compass can help you navigate insurance, financial, legal, and other issues you are facing. Use this online form to start your conversation with a Compass case manager today.
The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF and supports a broad range of research initiatives to tackle the disease from all angles.
The CF Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Our understanding of CF continues to evolve as scientists study what causes the disease and how it affects the body. These insights drive the development of new and better treatments and bring us one step closer to a cure.
Researchers, supported by the CF Foundation, have made tremendous advances to improve the health and quality of life of people with CF. We are committed to providing the tools and resources you need to continuously build upon this work.
Recipients include four programs from around the country that engage and empower the CF community.
Published on July 24, 2020
The Cystic Fibrosis Foundation announced the recipients of its fifth annual Impact Grants, which provide up to $10,000 per year of funding to individuals and organizations who are leading unique projects within the cystic fibrosis community to support
people living with the disease, their families, and loved ones.
This year's grantees will support the CF community through various programs that focus on virtually engaging and connecting people with CF, including online dance classes, job training workshops, and a storytelling podcast. Another program is focused
on supporting and fostering connection across the Black CF community. According to the CF Foundation Patient Registry, approximately five percent of people with CF identify as Black, and are more likely to have rare mutations that cannot be treated
with current modulators, making additional support for the Black CF community an important step to improve outcomes and quality of life.
Staying six feet apart from other people with CF is normal for most living with the disease who face greater risk of getting and spreading germs to one another. With heightened infection risk due to COVID-19, building and maintaining online communities
is more important now than ever.
Recipients are selected in consultation with the CF Adult Advisory Council, an external panel entirely composed of adults living with CF. In addition to the four new grants in 2020, three 2019 Impact Grants have been renewed for one year.
A storytelling podcast that highlights the unique moments of life with CF through interviews with many people who have different perspectives of the disease to better amplify their voices, connect the community, and raise awareness
A free, livestreamed dance class for the CF community that replicates a traditional dance studio experience by providing video group dance classes featuring movement designed specifically for people living with CF and the opportunity for participants to connect
A program expansion from the National Organization of African Americans With Cystic Fibrosis (NOAACF), that aims to connect and engage people with CF and their families in the African American community through online workshops, an expanding network of
virtual support, and more
A program piloted by the Claire’s Place Foundation, Work Proudly provides adults with CF and their caregivers with job training and equipment to gain the skills necessary to be competitive in the job market and acquire flexible, work-from-home employment
2019 Impact Grant renewal recipients are:
Fall Risk: The CF Musical Comedy
is a CF-based musical comedy bringing people living with CF together virtually in musical theatre through singing,
playing instruments, writing music, or lending their voice for a speaking role. Participants will take part in arranging music for the show and recording a demo CD.
Health Advocacy Summit
is a day-long conference, with the option to attend and interact virtually, that provides
young adults with chronic and rare diseases with the support, knowledge, and skills to become strong advocates for themselves and their communities through discussion-based sessions and speakers.
sINgSPIRE Virtual Choir
is a virtual choir expanded from the Breathe Bravely sINgSPIRE program where people living with CF receive music and voice assignments, connect through
online group video rehearsals, and record their individual parts together to create a unified choral piece.
Applications for 2021 Impact Grants will open in January 2021. Find more information about the Impact Grants Program here.
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