What You Need To Know

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Carrier Testing for CF

CF is an inherited disease passed from parent to child. Genetic testing can be used to tell if a person carries a mutation of the CF gene or carry two CF disease-causing mutations.

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  1. Article

    Newborn Screening for CF

    Newborn screening (NBS) now includes a screen for cystic fibrosis in all 50 states. Early diagnosis and treatment of CF in newborns can help parents identify was to keep the child as healthy as possibly or delay or prevent CF symptoms or health problems.

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  2. Article

    Sweat Test

    The sweat test is a simple, painless test that measures how much salt is in your baby's sweat, and is the most reliable way to diagnose CF.

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  3. Article

    CFTR-Related Metabolic Syndrome (CRMS)

    Your doctor may diagnose your child with CFTR-Related Metabolic Syndrome (CRMS) if sweat tests fall into an intermediate range. Your child does not have CF, but this diagnosis does mean your child may experience problems in parts of the body affected by CF.

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  1. Article

    How Babies are Screened in IRT-Only vs. IRT-DNA States

    Babies born in a state that only tests IRT levels will need to have the IRT test repeated at a pediatrician's office. If the IRT level remains high on a second test, a sweat test will need to be done at a CF Foundation-accredited care center.

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  2. Article

    How Do Others Handle Positive Screening Results for CF?

    Results of a positive CF newborn screen can be stressful. The world of CF is filled with caring professionals and supportive parents to help handle this news. Lisa Greene, a mom of two children with CF shares her perspective.

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More About Testing

  1. Article

    Newborn Screening Clinical Care Guidelines

    This clinical care guideline from the Cystic Fibrosis Foundation provides recommendations for implementing a newborn screening program.

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  2. Article

    Sweat Test Clinical Care Guidelines

    These clinical care guideline from the Cystic Fibrosis Foundation provides recommendations for "sweat tests," a simple, painless test and the most reliable way to diagnose CF.

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  3. Article

    CF Diagnosis Clinical Care Guidelines

    This clinical care guideline from the Cystic Fibrosis Foundation provides a standardized diagnosis process for newborns and older patients.

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  4. Explainer

    Diagnosed with Cystic Fibrosis

    Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a sweat chloride test, a genetic test and a clinical evaluation at a CF Foundation-accredited care center.

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Find Events Near You

With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.

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