What You Need To Know

Blog Post

Carrier Testing for CF

CF is an inherited disease passed from parent to child. Genetic testing can be used to tell if a person carries a mutation of the CF gene or carry two CF disease-causing mutations.

Learn more

  1. Article

    Newborn Screening for CF

    Newborn screening (NBS) is a nationwide program to find babies born with certain health conditions, including cystic fibrosis. While a sweat test should be used to rule out or confirm a CF diagnosis, NBS can help you and your health care providers take immediate steps in order to keep your child as healthy as possible.

    Learn more

  2. Article

    Sweat Test

    If you show symptoms of cystic fibrosis or your baby has a positive newborn screen for CF, a sweat test at a CF Foundation-accredited care center can provide a conclusive CF diagnosis by measuring the concentration of salt in a person’s sweat. This simple, painless test is the most reliable way to diagnose CF.

    Learn more

  3. Article

    CFTR-Related Metabolic Syndrome (CRMS)

    Your doctor may diagnose your child with CFTR-Related Metabolic Syndrome (CRMS) if sweat tests fall into an intermediate range. Your child does not have CF, but this diagnosis does mean your child may experience problems in parts of the body affected by CF.

    Learn more

  1. Article

    How Babies are Screened in IRT-Only vs. IRT-DNA States

    Babies born in a state that only tests IRT levels will need to have the IRT test repeated at a pediatrician's office. If the IRT level remains high on a second test, a sweat test will need to be done at a CF Foundation-accredited care center.

    Learn more

  2. Blog Post

    The Unexpected Road to Unexpected Blessings

    There is no way to prepare yourself for hearing the words, "I am sorry but your child has cystic fibrosis." That day, that moment, is forever etched into my memory, heart and soul.

    Learn more

More About Testing

  1. Article

    Newborn Screening Clinical Care Guidelines

    This clinical care guideline from the Cystic Fibrosis Foundation provides recommendations for implementing a newborn screening program.

    Learn more

  2. Article

    Sweat Test Clinical Care Guidelines

    This clinical care guideline from the Cystic Fibrosis Foundation provides recommendations for "sweat tests," a simple, painless test and the most reliable way to diagnose CF.

    Learn more

  3. Article

    CF Diagnosis Clinical Care Guidelines

    This clinical care guideline from the Cystic Fibrosis Foundation provides a standardized diagnosis process for newborns and older patients.

    Learn more

  4. Explainer

    Diagnosed with Cystic Fibrosis

    Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a sweat chloride test, a genetic test and a clinical evaluation at a CF Foundation-accredited care center.

    Learn more

Find Events Near You

With more than 70 chapters and offices across the country, it’s easy to find and join a local Cystic Fibrosis Foundation chapter near you.

Find Events