Policy Principles That Drive Our Work

With promising new discoveries in the pipeline and advancements we've made in the search for new treatments and a cure, we must continue our work to protect access to adequate, affordable insurance that preserves access to high-quality cystic fibrosis care; and support progress toward new therapies and a cure.

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In this article
  • We advocate for policies that promote access to the highly specialized care and treatments that a person with cystic fibrosis needs to live a long and healthy life.
  • Principles that drive all our work include adequacy, affordability, availability, transparency, and value.

We promote policies to help ensure that all people with cystic fibrosis have access to high-quality, specialized care and adequate, affordable health insurance. We also support policies that contribute to a health care system that best serves all people living with the disease.

Our Core Policy Principles

  • Adequacy: Adequate health insurance covers therapies and care delivered by an accredited care team using the latest research, clinical guidelines and best practices.
  • Affordability: Affordable health plans help ensure access to needed care in a timely manner from an experienced provider without undue financial burden.
  • Availability: Available health coverage provides adequate benefits at an affordable cost regardless of an individual's income, employment, health status or geographic location.
  • Transparency: Transparency around health care information can help ensure people with cystic fibrosis, clinicians and institutions have all available evidence when making important health decisions.
  • Value: Increasing our understanding about the value of CF care can support the delivery of high-quality care and contribute to a sustainable health care system.
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About the CF Foundation | Public Policy
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