By educating elected officials and other government decision-makers on the needs of the cystic fibrosis community, the Cystic Fibrosis Foundation works to shape public policy to help our efforts to cure CF and provide all people with CF the opportunity to live full, healthy lives. Below find a listing of our state and federal statements, letters, and regulatory comments.
Statements, letters, and regulatory comments issued before July 2023 can be found in our archive.
In a letter to the President Pro Tempore and Majority Leader, the Cystic Fibrosis Foundation thanked the Senate for their continued support of the Adult CF Assistance Program and urged that they use unspent funds appropriated for people with CF in previous years to extend the program past March 31.
The Cystic Fibrosis Foundation joined other patient advocacy organizations in providing comments to Nevada’s Department of Health and Human Services requesting pass-through funds to implement a coverage program that would improve access to affordable coverage in the state.
CF Foundation letter thanking Michigan’s governor for providing adequate funding for the Children’s Special Health Care Services program and Medicaid in the state’s 2024 budget, both of which play an important role in ensuring consistent access to care for Michiganders living with CF.
CF Foundation letter to the Wisconsin governor thanking him for funding the Wisconsin Chronic Disease Program and Wisconsin Medicaid in the 2023-2025 biennial budget.
CF Foundation letter to the Ohio governor and state legislature thanking them for funding the Children and Youth with Special Health Needs program and Ohio Medicaid in the 2024-2025 budget.
CF Foundation letter to New York’s governor asking that she sign a bill that would reinstate the Adult CF Assistance Program.