Seeing cystic fibrosis portrayed in film and on TV is a mixed bag, and often my disease is overly dramatized to get more views. But I still think there’s value in making people more aware of CF.
Ashley Wilson is the creator behind the YouTube channel, Ashley’s Roses, and the host and producer of the Blooming Roses podcast. She is also the author of the poetry book, Beauty Grown From Thorns. Through her independent production company, Ashley has produced two films, I Choose You and Mezzaluna. She is currently working on her third film, Beauty Grown From Thorns. Ashley uses her platforms to share her story and bring awareness to cystic fibrosis. She strives to create multimedia content that leads to positive change in a modern world.
Losing my best friend and cystic fibrosis mentor was crushing. I had to learn to let myself grieve -- and do it offline -- to be able to cope with this loss.
When I was in the hospital for a month-long stay, I watched YouTube videos created by people with cystic fibrosis. Feeling inspired by their videos, I launched my own vlog one year later. Now I feel more connected to people in the CF community than I ever have before.