Elizabeth Dolan

Adult with CF

January 2023 — We were deeply saddened to learn of Elizabeth’s passing. She was a patient advocate, social media extraordinaire, Tomorrow’s Leader, event speaker, and contributor to the CF Community Blog. She will be deeply missed by many.

Born in St. Louis, Mo. but raised in Wichita, Kan., Elizabeth was diagnosed with cystic fibrosis at 4 months old. The youngest of three, and the only child with CF, Elizabeth's health began to decline during her sophomore year of college, causing her to withdraw from school and move home. Three years ago, Elizabeth moved to the Bay Area to focus on her health. Despite the progression of her disease, Elizabeth enjoys traveling, photography, reading, and buying too many sweaters for her little dog, Tucker.

Blog Posts

Liz-Dolan-Lung-Transplant-Hospital-Bed-Featured-Rectangle

My lung transplant journey was long and, at times, full of uncertainty. Now that I have new lungs, I want to live my life to the fullest and honor my donor while I do.

Jan. 14, 2020| 7 min read

When you are waiting to be listed for a lung transplant, it can feel like you're in limbo. Through the many frustrations and uncertainties, I've learned that it's important to get support -- not only for my physical health, but for my emotional health as well.

Dec. 6, 2018| 3 min read

Elizabeth-Dolan-Uncertainties-Wheelchair-Smile-Dog-Featured-Rectangle

After my last hospitalization, I faced new challenges and issues related to my cystic fibrosis -- including panic attacks and supplemental oxygen. Although it's been difficult adjusting to my “new normal,” I am slowly learning how to cope with the uncertainties of my disease.

Sept. 6, 2018| 4 min read

Elizabeth-Dolan-Clinic-Featured-Rectangle

Burkholderia cepacia took a toll on me physically, but overcoming the emotional blow was even more difficult.

Nov. 7, 2017| 4 min read