In my experience, the best way to support a loved one with cystic fibrosis is to listen closely and remember the details of his or her most common treatments and complaints.
The mother of two children, designer, fashion blogger, and cystic fibrosis warrior, Lauren recently received a double-lung transplant after more than 120 days in the hospital. Also an author, she recently published a collection of poems and illustrations, "The Sky Cracked Open." Lauren will be the keynote speaker at the Cystic Fibrosis Foundation Gala and will receive the Breath of Life Award. Lauren has been featured in People Magazine, Brit+Co, and appeared on the Having it All podcast. She is a Las Vegas native and currently resides in Las Vegas with her husband, children, and beloved dog Charlie.
Blog Posts
I spent 2020 in COVID-19 quarantine and in the hospital separated from my family while waiting for transplant. I'm very grateful that the call came and I have new lungs -- and a new life.
My relationship with the idea of a lung transplant has changed over time. Although I'm approved for transplant now, it is a complicated process with a full range of emotions. Here's what I learned along the way.
Teaching My Kids Hard Truths About CF