Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is actually obsessive-compulsive disorder (OCD).

Lily lives with cystic fibrosis and does not benefit from CFTR modulators. Through her writing, she sheds light on the experiences often left out of the conversation. When she’s not writing, you can find Lily wherever the sun is. She enjoys hiking, caring for her animals, Irish dancing, swimming in the closest body of water, or diving into her next new hobby.
Blog Posts

June 25, 2025|
4 min read

Working in the medical field while having cystic fibrosis isn’t easy. But my occupational therapy career has helped me develop skills that make it easier for me to find a healthy balance between work and life with CF.
Sept. 21, 2023|
7 min read