It was hard for me to accept that having CF limited my finances as well as my body. But doing so helped me learn how to live within a fixed income and ask for help when I needed it.
Marieliz is an adult living with cystic fibrosis and bronchiectasis. Diagnosed as an adult, she has used her journey to advocate for others who were also diagnosed later in life as well as minority communities. Marieliz has volunteered for the Cystic Fibrosis Foundation in various capacities — including as a member of the National Volunteer Leadership Council in 2024 — and hopes to continue doing so in the future. She lives with her husband Michael and their many animals whom they love and cherish dearly.
Blog Posts
I was diagnosed late with cystic fibrosis. When I found out I had bronchiectasis on top of that, I was crushed. However, nine years later, my health is as good as it can be, and I’ve learned the value of fighting back.
People who are not used to isolation may feel bored during this pandemic-driven physical distancing. But people with cystic fibrosis are experts at keeping themselves busy and fulfilled at home.
I don't make many plans anymore, because having cystic fibrosis means I never know how I'll feel from one day to the next or what I'll be capable of doing physically.
I began taking prescribed medication to control my cystic fibrosis-related pain. Soon, the medication tried to control me.