I was diagnosed late with cystic fibrosis. When I found out I had bronchiectasis on top of that, I was crushed. However, nine years later, my health is as good as it can be, and I’ve learned the value of fighting back.
Marieliz has cystic fibrosis and bronchiectasis. She is a member of the patient advisory council at Presence St. Mary and Elizabeth Medical Center in Chicago, where she ensures patients receive top care and attention from medical staff. Marieliz enjoys getting involved in Foundation projects and currently lives in Chicago with her husband, Michael, and they share an adopted cat named Penelope Marie.
People who are not used to isolation may feel bored during this pandemic-driven physical distancing. But people with cystic fibrosis are experts at keeping themselves busy and fulfilled at home.
I don't make many plans anymore, because having cystic fibrosis means I never know how I'll feel from one day to the next or what I'll be capable of doing physically.
I began taking prescribed medication to control my cystic fibrosis-related pain. Soon, the medication tried to control me.
My atypical cystic fibrosis led doctors to believe that my health issues had another cause. Members of the CF community welcomed me as one of their own and helped me to find the answer.